About CPFF

CPFF President Description

The Canadian Pulmonary Fibrosis Foundation is evolving and growing!! It’s now time for me to step aside, as I have had some recent health challenges, and let someone new takeover as the President (a volunteer, part time non-paid position).  Starting the foundation with my family and nurturing its growth over the past 9 years has been one of the most rewarding experiences of my life. I’m eternally grateful to have had the opportunity to give back to the pulmonary fibrosis community in Canada as the people involved in this disease have done so much for me – thank you to the front line workers, the specialists and all those living with the disease and their caregivers who have supported me throughout my journey.

And, thank you to those who step up and put their name forward to take on the task of President and leader of the Canadian Pulmonary Fibrosis Foundation – yes it will be challenging at times, but mostly it will be profoundly rewarding to know that you are directly, positively impacting the lives of people affected by this horrendous disease.

— Robert Davidson, Founder and President

 

JOB DESCRIPTION
VOLUNTEER PRESIDENT
(This is a non-paid part time position)
CANADIAN PULMONARY FIBROSIS FOUNDATION

 

Organization Summary
The Canadian Pulmonary Fibrosis Foundation (CPFF), Canada’s only health charity focused solely on pulmonary fibrosis (PF), was created in 2009, to raise money to find causes and treatments for PF, provide education, information and support for people affected by pulmonary fibrosis.  Since its inception, the foundation has grown considerably.  It has donated approximately $800,000 to Canadian research, has a well-established board of directors of nine, a medical advisory board comprised of nine of Canada’s top respirologists, a highly regarded, informative website, active social media platforms, a PF community of approximately 3500 patients and caregivers, volunteers, support groups and grassroots presence in communities across Canada.

Our vision is to make lung transplants the LAST resort not the ONLY resort for people with PF. Our mission is to raise funds to finance research to better understand, develop treatments and find a cure for PF.

The key objectives in the battle against PF are to:

  • Raise public awareness about this fatal disease;
  • Offer support to those affected by PF;
  • Represent Canadians affected by PF to government, healthcare professionals, the media and the public – to be “the patient voice” for PF


Position Summary
The volunteer President will lead the foundation through its next evolution of development and growth. Expanded research and treatments and increased awareness for this rare and deadly disease are a must and provide new and exciting opportunities for the foundation to achieve its vision, mission and objectives.

Key Responsibilities
As the “chief volunteer”, and the face of the foundation, the president will:

  • Lead and direct the Executive Director, the board, staff/volunteers, and the community to further the CPFF’s mission; intervene if conflicts of interest or confidentiality issues arise; assist with new board member orientation and mentor the president-elect.
  • Lead the planning and monitoring of CPFF annual budget, work closely with pharmaceutical companies and other funding or donor entities, ensure appropriate and prudent financial management practices and principles are in place for CPFF’s future.
  • Be the board ambassador, and as such act as a spokesperson to develop and nurture relationships with key stakeholders, pharmaceutical and medical communities, donors and the general public. The president speaks in public on behalf of the organization and advocates for the cause and will be the face of the foundation. He or she will attend and/or assist in organizing social functions to raise funds and awareness in the community.
  • Work with the Executive Director to ensure board resolutions are carried out. Together, the president and the Executive Director set the agendas, which will be focused on key strategic issues.
  • Oversee the recruitment of new board members, identify candidates for its future leadership; establish committees and appoint committee chairs when required and serve as an ex-officio member on any committee when necessary.
  • Review, understand and interpret the organization’s articles of incorporation and by-laws, policies and procedures to ensure compliance.


Skills and Requirements:

  • Demonstrated community leadership in a not-for-profit organization or national charitable foundation;
  • Willingness to serve the national foundation as a volunteer (approx. 20 hours per month). This is not a full time position but the President must be readily available.
  • Excellent oral and written communication skills to effectively conduct meetings, oversee written funding/grant proposals, clearly, listen and seek input from others.
  • Knowledge or experience in board governance, health policy, finance and advocacy.
  • Leadership and strategic planning skills to develop and implement future plans for the foundation.
  • Strong group dynamic skills to conduct effective meetings, manage staff and board members; conflict resolution skills to handle difficult issues and deal with conflicts that may arise.
  • Proven relationship skills with industry, government, medical community and other stakeholders.
  • Time management skills to attend monthly board conference calls, annual general meeting and other national or international meetings as required.
  • Knowledge of fundraising and coordinating special events.
  • Support of, and participation in, patient education, information forums and other programs.
  • Protect the name and any copyrights of CPFF.

Interested candidates may send their resume to: Rosemary@cpff.ca

The deadline to submit your application is Friday, September 8, 2017.

 

Organization Summary
The Canadian Pulmonary Fibrosis Foundation (CPFF), Canada’s only health charity focused solely on pulmonary fibrosis (PF), was created in 2009, to raise money to find causes and treatments for PF, provide education, information and support for people affected by pulmonary fibrosis.  Since its inception, the foundation has grown considerably.  It has donated approximately $800,000 to Canadian research, has a well-established board of directors of nine, a medical advisory board comprised of nine of Canada’s top Respirologists, a highly regarded, informative website, active social media platforms, a PF community of approximately 3500 patients and caregivers, volunteers, support groups and grassroots presence in communities across Canada.

Our vision is to make lung transplants the LAST resort not the ONLY resort for people with PF. Our mission is to raise funds to finance research to better understand, develop treatments and find a cure for PF.

The key objectives in the battle against PF are to:

  • Raise public awareness about this fatal disease;
  • Offer support to those affected by PF;
  • Represent Canadians affected by PF to government, healthcare professionals, the media and the public – to be “the patient voice” for PF