Executive Director

Position Description

Executive Director – Position Description


The Executive Director (ED) is responsible for overseeing all CPFF’s operations, including staff management, fundraising, financial management, operations, volunteer recruitment and management – including patient education events, program delivery and board development.

The ED will ensure that CPFF operates in a professional manner, meets the goals and obligations as   set out by the Board, and continues to grow and expand CPFF as a viable not-for-profit organization.


Leadership & Management:

  • Ensure ongoing program excellence, rigorous program evaluation, and consistent quality of finance and administration, fundraising, communications, and systems; recommend timelines and resources needed to achieve the strategic goals.
  • Oversee the development, prioritization and implementation of projects and initiatives determined by the Board and in line with contractual commitments to funders and partners, including Patient Education Events.
  • Actively engage and energize CPFF volunteers, board members, committees, partnering organizations, and funders.
  • Develop, maintain, and support a strong 12-member Board of Directors: serve as ex- officio of each committee.
  • Recruit, develop, manage and inspire CPFF volunteers in all regions across the country
  • Manage, in consultation with the Board Chair and Executive Committee, all annual planning activities, including development of annual business plan and budget, and delivery of AGM.
  • Manage ongoing advocacy activities and liaise with other patient advocacy groups in Canada internationally
  • Liaise with the CPFF Medical Advisory Board (MAB) to ensure all CPFF patient and caregivers information and education materials are current and medically accurate and that research grants are awarded with the valuable input of members of the MAB
  • Ensure organizational infrastructure, practices and policies comply with legislative requirements and minimize risk to the organization.
  • Manage board development activities (in partnership with Board Chair and others), including tracking and managing terms; recruit for replacements based on term limits; and develop Board Terms of Reference updates as needed.
  • Oversee processing of financial matters in concert with the bookkeeper.
  • Provide supervision and direction to CPFF contractors and future staff, including website master and administrator, fundraising coordinator.
  • Develop and provide social media content as required.

Fundraising & Communications:

  • Oversee in conjunction with the Board of Director representative(s) and fundraising coordinator, planning and execution of fundraising activities, including donor development and management (i.e., corporate relations, individual donor requests, donation processing and receipting, etc.); expanding channels for revenue generation and overseeing major fundraising initiatives.
  • Deepen and refine all aspects of communications—from web presence and use of social media to newsletters and external relations – with the goal of creating more awareness for the foundation.
  • Cultivate new relationships for fundraising opportunities.

Planning & New Business:

  • Recommend to the Board strategic initiatives, strategies for accomplishing CPFF’s goals and objectives, and mechanisms that ensure organizational development and growth.
  • Provide feedback to the Board and provide information needed for informed decision making.


The ED will be thoroughly committed to CPFF’s mission. All candidates should have proven leadership, coaching, and relationship management experience. Concrete demonstrable experience and other qualifications include:

  • Minimum 5 years’ experience in non-profit management and fundraising.
  • Excellent relationship and management skills.
  • Deep knowledge and experience in non-profit development and sustainability.
  • Experience with patient-based non-profit activities is ideal, particularly in supporting patient issues, treatment option research and advocacy at provincial and national levels of government.
  • Excellent administration skills, including accounting, budgeting, planning, and staff management, with careful attention to detail
  • Strong leadership skills
  • Past success working with a volunteer Board of Directors with the ability to cultivate existing board member relationships
  • Volunteer management experience; ability to cultivate and maximize use of volunteer resources.
  • Strong marketing, public relations, and fundraising experience with the ability to engage a wide range of stakeholders and cultures
  • Strong written and verbal communication skills; a persuasive and passionate communicator with excellent interpersonal and multidisciplinary project skills
  • Action-oriented, entrepreneurial, adaptable, and innovative approach to business planning
  • Ability to work effectively independently and in collaboration with diverse groups of people
  • Passion, idealism, integrity, positive attitude, mission-driven, and self-directed
  • Proficiency in both of Canada’s official languages is an asset.
  • Be available to travel to patient meetings, conferences, etc. as needed.