World Transplant Games June/July 2017

Personal Stories

World Transplant Games June/July 2017

By Vincent Fearon, Toronto, ON Imagine being in a room of over 2,000 people most of whom have had transplants (heart, lungs, liver, pancreas, kidneys or bone marrow) or supported a loved one undergoing this life-changing operation.  Imagine people, complete strangers, coming up to you and asking

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My Journey with IPF and Transplant

By Dr. Gary S. Ford, Newmarket, ON I am a 58-year-old dentist expecting to retire to the “good life” in 7 years, when I heard my respirologist say: ”You have Idiopathic Pulmonary Fibrosis (IPF). If you take 20 men that have been diagnosed with IPF, without treatment,

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A Gift of Life: My Journey Through IPF

By Russ D’Abreu In the Fall of 2009, I knew something was wrong when I started experiencing a buildup of mucus in my throat causing a constant clearing and coughing. The colour was always clear so, since both my family doctor and I felt it was post

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Coming to terms with my IPF

by Jerry Craig, Dartmouth, NS IPF has been a surprise and a life-altering challenge. I’m nearly 71 years old, and was formally diagnosed three years ago. I now know that my disease process has been going for a lot longer but had always been diagnosed as something

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A Daughter’s Journey Through Pulmonary Fibrosis

By Suzana Pinto At 32, I never imagined I’d have to deal with my father getting sick, let alone dying because of pulmonary fibrosis.  Sadly, that’s my reality, but I hope that by sharing my family’s journey with pulmonary fibrosis, I can bring awareness and hope to

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My Weight Loss Journey for IPF and Transplant

By Barbara Barr-Haylock I first experienced symptoms of breathlessness and persistent coughing in 2005. I weighed 230 lbs. (42 BMI) so I lost 60 lbs and the symptoms went away. But I weighed 190 lbs (34.8 BMI) by the time I was diagnosed with PF in January

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Terry’s Story – Assessed Too Late

My husband Terry fought a valiant, courageous year and a half battle with the disease named idiopathic pulmonary fibrosis but he ultimately lost that battle on May 8, 2017. Things started out innocently enough.  Terry was experiencing coughing and the feeling of getting a cold or an

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Dawn’s Story

Back in September we reported about Dawn’s intentions to complete a walk in honour of her late husband. Here is an update of her story. In September 2016, I accepted my friend’s invitation to join her on the last leg of the Camino de Santiago. I felt

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Vince — Fun and Games

In my last piece for CPFF I wrote about having IPF and my experiences following a double lung transplant in July 2014. Nine weeks later I’d improved my walking, could tackle small flights of stairs and had renewed confidence in my breathing. But, despite my efforts in

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Tegan’s Grandma

On March 22nd, 2016, I lost my grandma to IPF. She was my best friend; my favourite person in the entire world. We were very close. I was going to school in BC, and didn’t get to spend as much time with her over the past 4

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