A personal story and with plenty of gratitude, I’m so very pleased and proud to announce the
CPFF Peer Support Program
When I was first diagnosed with IPF 8 years ago, I wanted to find information and to speak to someone who could help me to understand this disease and to know what to expect; my doctors did not have the necessary time. There was nowhere to go in Canada. In fact, the lack of places to turn was what inspired me to create the CPFF, so that others affected by PF and IPF have a place to turn for information, education and someone to talk to who understands.
Over the last 6 years, I’ve been taking calls and answering e mails from patients and caregivers across the country. It is such an honour to be on the other end of the phone with someone who is, like I was, desperate to get more information about this horrible disease.
Most importantly, I like to reassure the caller that they aren’t alone, The CPFF community is here to provide whatever help we can, not only on the phone but through our educational materials, our advocacy and awareness work, our funding of research.
From one to several – it used to be just me, but now we have gracious volunteers from across the country, who have been affected by PF or IPF, available to listen to you and to offer you their support.
If you’ve been diagnosed or are a caregiver of someone with IPF or PF and you feel alone or just want someone to talk to, someone who understands, please call or e mail one of our volunteers. They have been there and know what you are going through. Their contact information is on our website at www.cpff.ca/support/cpff-peer-support/
If you yourself would like to become a peer support volunteer, please contact me at Robert@cpff.com.]
CPFF Peer Support
Connect with us anywhere in Canada.
Whether you are a Pulmonary Fibrosis (PF) patient, a caregiver, or a family member/friend of someone living with PF, we are here to offer our support and answer your non-medical questions.
The CPFF has knowledgeable volunteer contacts across Canada to answer to your needs within your specific region.
They have been there!
Please feel free to connect with any of the below individuals located in various locations across Canada.