Support Group Toolkit

Toolkit Table of Contents

Idiopathic Pulmonary Fibrosis (IPF)
Education and Support Group Toolkit Table of Contents

 

  1. Welcome
  2. Group Leader Module
    • Group Leader Role
    • Purpose & Role of a Support Group
    • Benefits of a Support Group
    • About this Toolkit
    • Finding Members
    • Presentations
    • Before, During and After the Meeting
    • Medical Advice
    • Onlne Support Groups
    • Online Applications
    • Obstacles
    • Starting Your Support Group
    • Trusted Resources
  1. Module 1: IPF 101
    • What is IPF?
    • Progression
    • Facts about IPF
    • Signs and Symptoms
    • Isolation & Support
    • IPF Patient Survey
  1. Module 2: IPF Diagnostic Tools & Treatments
    • Diagnostic Tools
    • Treatment Options
    • Clinical Trials
    • Lung Transplants
  1. Module 3: How to Manage IPF
    • Supplmemental Oxygen Therapy
    • Pulmonary Rehabilitation
    • Overcoming Co-Morbidlities
      • Acid Reflux
      • Pulmonary Hypertension
  1. Module 4: Living with IPF
    • Oxygen at Home
    • Staying Active and Eating Well
    • Getting Involved
    • Staying Motivated
    • Overcoming Obstacles
    • Travelling with IPF
  1. Module 5: Communication and Advocacy
    • Good Communication
    • Talking with your Doctors
    • Discussing IPF with your Family
    • What are your Needs?
    • What is Advocacy?
    • Types of Advocacy
    • Why Should you be an Advocate?
    • How to be an Advocate
  1. Module 6: Preparing for a Future with IPF
    • The Decision is Yours to Make
    • Kubler-Ross Stages
      • Denial
      • Anger
      • Bargaining
      • Depression
      • Acceptance
    • Why Plan Ahead?
    • Overcoming Financial Barriers
  1. Public Service Announcement (PSA) Script
  1. Toolkit Checklist
  1. Health Care Provider Letter
  1. Information CD-ROM

If you have any questions about starting your support group or have questions about or how to use the tools in this toolkit, please email info@prizsm.ca or call  1-877-782-2361