Living with Pulmonary Fibrosis

Helpful Links

Information on IPF

Pharmaceutical Treatment Information for PF

Living Well with PF

Living Well with Pulmonary Fibrosis, by Respiplus™ — New online tool to help patients and healthcare professionals improve the management of pulmonary fibrosis. The tool concentrates on eight different modules:
• Dealing with a diagnosis
• Adopting and maintaining a healthy lifestyle
• Treating Pulmonary Fibrosis
• Managing the impact of Pulmonary Fibrosis
• An action plan for when symptoms get worse
• Get moving… Breathe Easy with Pulmonary Fibrosis
• Integrating Long-term Oxygen therapy
• Pulmonary Fibrosis and End of lifeThis platform was developed by physicians, researchers who specialize in respiratory health, in collaborations with the CPFF, Quebec Lung Association, and the Quebec Network for Education in Respiratory Health. If you have any questions or comments, please direct them to: Living Well with Pulmonary Fibrosis.

Patient Groups and Organizations

Travel

People with lung disease and other pre-existing conditions often find challenges for travelling especially flying and travelling outside their country. From time to time, we will provide links or information that we hope you will find useful.

Travel Insurance

From the December 2014 issue of the Hope Newsletter, a newsletter for lung transplant patients, Travel Insurance for Pre-Existing Conditions. Thank you to Ann McGuire for kindly sharing this information with our PF community.

Palliative Care

Palliative Care at the End of Life – Health Quality Ontario
This information is meant for Ontario residents, but it does include useful information no matter where you live. If you are aware of other similar programs in your region, please forward a link and we will include them in this section.