Blog

6 Ways for Raising Awareness & Funds

Up to 30,000 Canadians are believed to be affected by pulmonary fibrosis (PF), with about 6,000 new cases being reported every year in Canada. Currently, the two treatments options available only offer the possibility of slowing down the progress of this incurable disease.   These facts show

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8 Tips For Self-Advocacy

Being your own health advocate is one of the most important things you can do to receive the best care available, especially as pulmonary fibrosis patient. To some of you, self-advocacy may be scary and/or uncomfortable. Whether that is the case or not, here are some tips

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10 Tips to Manage PF

Managing the symptoms and side effects caused by pulmonary fibrosis (and its related treatments) is inevitable for all PF patients. Here are some tips for coping with them.   1. Exercise and stay active. Exercise and keeping active is extremely important in managing your pulmonary fibrosis.  Lisa

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ZoomerShow Toronto 2017

CPFF participated at the Toronto ZoomerShow during the Oct 28-29 weekend. Hosted by Hoffman-La Roche at their FightIPF booth, CPFF volunteers were available to talked to the over 600 visitors to the booth over the weekend.  Some of the visitors were those living with IPF or some

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London Drugs Customers Support CPFF

Attention – CPFF community in BC, Alberta, Saskatchewan and Manitoba — London Drugs  will be collecting donations for CPFF at the till from shoppers throughout the month of September to mark Pulmonary Fibrosis Month. Please encourage your family and friends to make a donation. Every bit helps!! Thank

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Profile of Patient Support Activities in Canada: Calgary, AB

In this feature, the CPFF recognizes the incredible efforts of volunteers across Canada, and share regional experiences and successes to inspire and promote the wonderful work being done. This July we are recognizing volunteers in Calgary, AB for their hard work, dedication, and commitment to help Canadians

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University of Alberta recognized by CFHI for innovative ILD program

Congratulations to the fine folks at the University of Alberta for the recognition they received for their Patient-Centred ILD Collaborative for Early Integrated Palliative Care program by the Canadian Foundation for Healthcare Improvement (CFHI). This program, along with 24 others, was selected based on its role as

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CPFF Reps in BC Fight for Better Care for IPF Patients

We are very proud of our CPFF BC Board Member, George Kaminsky along with other CPFF representatives in Vancouver who launched the Report Card on the BC government today with a grade of C-. The BC Report Card is based on the CPFF IPF Patient Charter, which

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CPFF Needs Assessment Survey — Thank you!!

A huge thank you to all of our CPFF community who participated in our needs assessment survey. We had a tremendous response with close to 600 individuals affected by PF who completed the survey. The valuable information and insights provided will be of great help to guide

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Good treatment news for people with IPF in Quebec

OFEV™ listed as Médicament d’Exception effective March 22nd, 2017 For treatment of idiopathic pulmonary fibrosis, in persons: • whose forced vital capacity (FVC) is 50% or more of the predicted value; and • whose carbon monoxide diffusing capacity is 30% to 79% of the predicted value corrected

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