PF Community

PF Support Groups

At some point in time, you may want to go beyond the phone and the Internet and meet others who share your experience in person.

PF is a rare disease and finding others close to you may be a challenge, but support can be two or more people getting together over a cup of coffee and sharing their experiences and supporting each other. If you’re looking for others to get together on a casual or regular basis to talk and share, join one of the PF Support Groups sponsored by CPFF.

Support groups that meet on a regular basis are often associated with ILD/PF clinics or other medical/health facilities. A list of PF Support Groups provides meeting details.

CPFF Patient Education and Support Group Toolkit

Maybe your small group is now ready to meet on a regular basis and open up your meetings to more people dealing with PF. The CPFF Patient Education and Support Group Toolkit will assist you in planning, sharing and executing a patient support group in your community in person or online. While primarily written from the IPF viewpoint, the majority is common to any form of PF and can provide a great resource.

And don’t hesitate to contact Sharon Lee ( about your plans to find out how CPFF can help you get started.


Read updates and special announcements in the CPFF Blog.