PF Support Groups

At some point in time, you may want to go beyond the phone and the Internet and meet others who share your experience in person.

PF is a rare disease and finding others close to you may be a challenge, but support can be two or more people getting together over a cup of coffee and sharing their experiences and supporting each other. If you’re looking for others to get together on a casual or regular basis to talk and share, call your regional CPFF Peer Support contact and let them know. He/she may already have a list of people who are similarly interested.

Support groups that meet on a regular basis are often associated with ILD/PF clinics or other medical/health facilities. A list of PF Support Groups provides meeting details.

CPFF Patient Education and Support Group Toolkit

Maybe your small group is now ready to meet on a regular basis and open up your meetings to more people dealing with PF. The CPFF Patient Education and Support Group Toolkit will assist you in planning, sharing and executing a patient support group in your community in person or online. While primarily written from the IPF viewpoint, the majority is common to any form of PF and can provide a great resource.

And don’t hesitate to contact Sharon Lee (info@cpff.ca) about your plans to find out how CPFF can help you get started.

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