Support Group Toolkit

Idiopathic pulmonary fibrosis (IPF) support and education groups play an important role in helping individuals living with IPF, their families and friends better understand the disease and their options to deal with its mental and physical impact. This toolkit has been developed by the Canadian Pulmonary Fibrosis Foundation (CPFF) with support from a medical steering committee and an initial grant from  InterMune Canada, Inc. (this company has since been bought by Roche Canada), to support individuals, strengthen the IPF community, and build new groups throughout Canada. This toolkit will assist you in planning, sharing and executing an IPF patient support group in your community, either in person or online.

This toolkit can be used in many different ways and can be tailored to your needs. This leader guide outlines a few suggestions about how you can use these resources. You may also use them in other ways as you see fit.

Read how one group of patients and caregivers got together and formed the Calgary PF Support Group

To find out how you can become connected with other support groups in your area, or to create a support group of your own, please contact Sharon Lee for guidance at

Title Page (pdf)
Table of Contents (pdf)
Group Leader Module (pdf)
Module 1: IPF 101 (pdf)
Module 2: IPF Diagnostic Tools and Treatments (pdf)
Module 3: How to Manage IPF (pdf)
Module 4: Living with IPF (pdf)
Module 5: Communication and Advocacy (pdf)
Module 6: Preparing for a Future with IPF (pdf)
Module Template (pdf)
Participant Recruitment Poster (pdf)
Public Service Announcement (PSA) Script (pdf)
Participant Registration Form (pdf)
Toolkit Checklist (pdf)
Health Care Provider Letter (pdf)
Binder Spine (pdf)