Before, During and After the Meeting

Before

Make a Plan:

  • What is the objective of the group?
  • Do you want to start a smaller support group or a larger patient forum?
  • How often will you meet?
    • Once a month?
    • Once every two weeks?
  • Where will the meetings be?
    • In person or online?
    • If in person, where?
  • How long will each meeting be?
    • 60 minutes?
    • 90 minutes?
  • How can I use these tools?
  • What topics will I present?
    • What is the next presentation about?
    • Do I need to make my own presentation?
  • Will you invite guest speakers*?
    • If so who?

Once you have identified other meeting participants, decide on a suitable meeting place and time, either in person or online. Keep in mind that some people may be working. If you would like to meet in person, try to find free meeting space in your community.

Some possible locations may include:

  • The library
  • Community centre
  • Hospital
  • Regional Lung Association
  • Rehabilitation centre
  • Coffee shop

During

  • Ask guests to register using the registration sheet included in this toolkit
  • Ask for an update on what participants have done since the last meeting
  • In this kit we have provided you with six topic specific meeting presentations to help guide you through your meetings
  • Leave time for group members to share their experiences and socialize
  • Share the work and responsibilities in the group. Discuss who can help you plan future meetings
  • Confirm the time, date, and topic for the next meeting, as well as how participants will use the information they learned

After

Please send the registration form back to the Canadian Pulmonary Fibrosis Foundation (CPFF). This will help members get involved with the IPF community and learn more about upcoming events, IPF news and advocacy opportunities. This registry will also help the CPFF refer newly diagnosed patients to existing support groups and connect group leaders.

Closer to your next meeting, send the group a reminder about the day, time and location by e-mail or phone. Be open and available for new group members. New people are always being diagnosed with IPF and are looking for support.