Whether you are dealing with a new diagnosis, want to learn more about your IPF or are a caregiver, it’s beneficial to talk to people who deal with similar challenges.

Family, friends and the medical community are there to help you but it’s different for them because they sometimes don’t see or feel what you need. Support groups take on various forms. They can be large groups with guest speakers, online discussions, or just a few members learning together and sharing their experiences etc.

  • Fosters identity by interacting with others “who know how you feel”
  • Improves feelings of loneliness through a unique empathy
  • Increases empowerment by encouraging them to take charge of their condition
  • Provides opportunity to ask questions in a safe, non‐judgmental place about daily living, emotions and creating accountability for their own health care
  • Increases self-­esteem and equality among members
  • Develops social role models develop and members learn how others cope
  • Provides opportunities for mentoring
  • Allows members to view their experiences as “normal”, understand they are not alone, feeling less isolated, depressed and stigmatized
  • Creates caring relationships and roles other than “patient” and provides immediate access to help
  • Information sharing provides practical approaches to lifestyle issues