Starting Your Support Group

  • Have you decided on a location for the meeting?
    • Are you meeting online?
      • If so, what program are you using?
      • Have you practiced using the program?
    • Are you meeting in person?
      • If so, have you received permission to use this location?
      • Have you arranged a light snack and/or beverages?

 

  • Have you decided on a reoccurring time and date to meet?
    • You may want to check with your group at the first meeting to see what days and times they prefer or can attend
    • Support groups meet as often or as sparingly as needed. ti good guide to start with is meeting once a month.

 

  • Have you promoted the support group?
    • There are various ways you can find more people to attend:
      • Tell your respirologist, nurse or respiratory therapist about the support group and ask them to share it with other patients
      • Ask to put up promotional posters (included in this kit) in waiting rooms, respiratory rehabilitation clinics or your regional lung association
      • Ask your local radio station if they will run a public service announcement (included in this kit) about the support group or even just mention it on air. Tell them about IPF and your story, they may want you to speak
      • Ask your local paper to add the meeting in their community event section.

 

  • Have you confirmed group participants?

 

  • Have you chosen a topic to present and discuss?
    • 6 module topics and presentations including information verified by a steering committee of medical professionals and community partners have been created for you and included in this kit
      • The modules have been built to follow in order starting at 1 and ending at 6. They include information, potential guest speakers and group discussion
    • Once you have completed all the modules with your group, you can create your own, using the module template included on the information CD at the end of this kit
    • Be sure you are sharing trusted information, verified by a reliable source such as a medical centre, foundation, or topic expert

 

  • Do you have a registration form ready for new members?
    • Registration forms are included in this toolkit. Please have new members sign in. We ask that you send all registration information to the Canadian Pulmonary Fibrosis Foundation (CPFF) to receive information on upcoming events, research and available programs. By doing this, you are helping to connect IPF patients and families across Canada while growing the IPF community. Additional registration forms can be found on the information CD in this toolkit or online at www.cpff.ca