What is Advocacy?

  • A verbal support or argument for a cause or policy
  • Raising awareness or educating people about your issues
  • Telling your story to someone with the purpose of making a difference
  • A process which takes time to gain tangible results
  • Reasonable and grounded in sound, rational thought
  • Empowers others to take some form of action
  • Personal, to your own style and comfort level


Types of Advocacy

Personal Advocacy

Asking questions, staying informed about your condition and the various treatment options available to you.

Issue-based Advocacy

Educating and influencing those who make public healthcare policy decisions in order to enact positive change to the systems that provide patient treatment or services.


Why Should You be an Advocate?

Every member of the IPF community can make a difference.

An organized group of individuals can have a profound impact on promoting public awareness and education about IPF. It can also support legislation that may have a positive impact on access to healthcare or increase research funding to find a cure.

As a patient with IPF, you are the expert in your personal health. You are the best spokesperson to address issues related to living with IPF from first-hand experience. Tell people how IPF impacts your life.


How to be an Advocate

  • Educate yourself about IPF
  • Join or start an IPF support group
  • Volunteer in the IPF community
  • Connect with your community and your elected representatives
  • Respect others privacy and confidentiality
  • Create an environment to empower those around you
  • Use the advocacy style you are most comfortable with