Support Meetings

The following ILD/PF Support Groups meet on a regular basis.

If you’re interested in starting a support group and would like more information, please check out the Patient Education & Support Group Toolkit

IMPORTANT: Because of COVID-19, CPFF is cancelling all in-person support groups meeting until further notice. Many groups have chosen to meet virtually. Connect with the contact person of the group nearest to you to find out if they are meeting virtually. For those who would like the option of conducting a virtual support group meeting, please contact Sharon Lee at sharon@cpff.ca

BRITISH COLUMBIA

VANCOUVER

Vancouver Pulmonary Fibrosis Support Group

Contact: Fran Schooley

FSchooley@providencehealth.bc.ca

phone:  604-806-8818 press 2

Until we can meet again face-to-face please contact Fran for information on Zoom meetings.

VANCOUVER ISLAND

Vancouver Island Pulmonary Fibrosis Support Group

Meetings are monthly
First Monday of every month

Contact: Dr. Holly Smith

Email address: hollyjeans@shaw.ca

Phone#: 250-245-3100

co-leader: Martha Hardy mjhardy@shaw.ca

Until we can meet again face-to-face please contact Holly or Martha for details on Zoom meetings.

ALBERTA

CALGARY

Calgary Pulmonary Fibrosis Support Group

Contact: Kirk Mathison  403-956-2813

Kirk.mathison@albertaHealthservices.ca

ILD Nurse Clinician, ILD Clinic, South | health Campus

Zoom meetings 1st Tuesday of each month 6.30-8.30pm

Zoom “chat” meetings 3rd Tuesday of each month  6.30-8.30pm

Contact Kirk to register your email address for these meetings.

EDMONTON

Edmonton Pulmonary Fibrosis Support Group

Contact: Karen Fox  780-904-8222   pfgroup@ablung.ca

Zoom meeting coffee/chat on 1st Wednesday of each month at 11 am

Zoom meeting 3rd Wednesday of each month 7-8.30 pm

Send an email, introduce yourself and she will send you an invite to the Zoom meeting.

SASKATCHEWAN

SASKATOON

Saskatoon Pulmonary Fibrosis Support Group

Contact: Peggy McKee RN, BSN, ILD Nurse Clinician, Chronic Disease Management
306-716-1615   peggy.mckee@saskhealthauthority.ca

Royal University Hospital 103 Hospital Drive, Saskatoon S7N 0W8

Zoom meeting 2nd Tuesday of each month 7pm – 8.30 pm

*No meetings in July and August
Please contact Peggy to register your email address for the Zoom meetings.

Manitoba

WINNIPEG

Winnipeg Pulmonary Fibrosis Support Group

Contact:  Debbie Homik, RRT  204-955-8100  winnipeg.ipf@gmail.com

Secondary: Amy Webb

Zoom meetings:  1st Tuesday of each month, alternate afternoon & evening. 

Please contact Debbie so she can send an invite and give you further information.

ONTARIO

BLENHEIM

Blenheim Pulmonary Fibrosis Support Group

Contact: Barbara Holden 519-401-6850   barbaraholden50@gmail.com

Until we can meet again face-to-face please contact Barbara to register your email address for the  Zoom meetings.

KINGSTON

Kingston Pulmonary Fibrosis Support Group

Contact: Larry Bunce, email larryb8634@gmail.com,  phone 613-384-3508
Group leader: Lyn McCarthy respipf11@gmail.com

Until we can meet again face-to-face, please contact Larry or Lyn to register your email address for Zoom meetings.

Dates vary but typically Fridays.

LONDON

London Pulmonary Fibrosis Support Group

Contact: Tim Brady 519-652-7254 bradyt215@gmail.com

Please RSVP by contacting Tim Brady either by phone or email if you are interested in attending.
Until we can meet again face-to-face, please contact Tim to register your email address for the Zoom meetings and for more information.

HAMILTON

Hamilton Pulmonary Fibrosis Support Group

Contact: Tim Brady bradyt215@gmail.com

Until we can meet again face-to-face please contact Tim to register your email address for Zoom meetings.

NIAGARA-ON-THE-LAKE

Niagara Pulmonary Fibrosis Support Group

A support group for those diagnosed with Idiopathic Pulmonary Fibrosis (IPF). Adults and their partners/family members of all afflicted with the disease are welcome, there is no charge to participate.

Program Offerings:
Advocacy, education and moral support in a non-medical environment

Contact:

Jack Rapattoni 905-708-2471  gianni4244@gmail.com

Dan Meloche  905-227-2214  danmeloche@hotmail.ca

Until we can meet again face-to-face please contact Jack or Dan for information on Zoom meetings

OTTAWA

Ottawa Pulmonary Fibrosis Support Group

Contact: Elizabeth Wiseman, RN, CRE, Clinical Administrator – Respirology
613-737-8899 ext. 75970
ewiseman@toh.ca
Until we can meet again face-to-face please contact Elizabeth to register your email address for Zoom meetings and for more information.

SARNIA

Sarnia Pulmonary Fibrosis Support Group

Contact: Tim Brady 519-652-7254 bradyt1215@gmail.com

Until we can meet again face-to-face please contact Tim to register your email address for Zoom meetings and for more information.

YORK REGION SOUTH

York Region South Pulmonary Fibrosis Support Group

Virtual Support Group during COVID-19

Contact: Sharon Lee
Please RSVP to sharon@cpff.ca

Secondary:  mandy.ettinger@uhn.ca

Group meets 2nd Thursday of every month.

  • Jan 8, 2021
  • Feb 12, 2021
  • Mar 11, 2021
  • Apr 8, 2021
  • May 13, 2021
  • Jun 10, 2021
  • Jul 8, 2021
  • Aug 12, 2021
  • Sep 9, 2021
  • Oct 7, 2021
  • Nov 11, 2021
  • Dec 9, 2021
TORONTO

Toronto Pulmonary Fibrosis Support Group

Contact: Mandy Sivananthan, NP, MN, BScN
mandy.ettinger@uhn.ca

Until we can meet again face-to-face please contact Mandy for information and to register your email address for Zoom meetings

NEW BRUNSWICK

Moncton

Moncton Pulmonary Fibrosis Support Group

Contact: Amanda Babineau   506-869-283   amanda.babineau@vitalitenb.ca

This is a bilingual support group meeting of patients and caregivers.

Il s’agit d’une réunion de groupe de soutien bilingue de patients et de soignants.

Until we can meet again in person please contact Amanda to register for Zoom meetings

Download the flyer here

Zoom Meetings:

Wednesday April 21st at 10:45 am:

https://gnb.zoom.us/j/65501315712?pwd=WUt6T1NWc3BiK0ZiTy93aTVlcEZPZz09&from=addon

Wednesday May19th at 10:45 am:

https://gnb.zoom.us/j/63570304333?pwd=M3Q1YU9nWWlKWUUwZmRCNUFlSUk1Zz09&from=addon

Wednesday June 16th at 10:45 am:

https://gnb.zoom.us/j/61123685167?pwd=aGZIZWxReW80SlY5cXlnSkcyZ1dxUT09&from=addon

Wednesday, July 14th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5Atf-ygpjoqHtyCAG20eOLWJpJsCwVRbcb7

Wednesday, August 18th at 10:30 am:
https://gnb.zoom.us/meeting/register/u50kde2hqzkrGtJKEPU7wVF-p_rs9c2V7frq

Wednesday, September 15th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5wkce6gqj0tHtTQgS9xAw871ENWmRScuHxy

Wednesday, October 13th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5EufuqppjwjGNVn4aCHpDGK1J6oBUbc-pyL

Wednesday, November 17th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5Eod-6hrTosG9FYEcKK0QRq9wRxl27q-qyw

Wednesday, December 15th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5wqce2hqzwiGN09hg-v9vr6LuKDxo9LmgQo

NEWFOUNDLAND

St. John's

St. John’s Pulmonary Fibrosis Support Group

Primary: John Hodder  johnwhodder@gmail.com
Secondary: Dr. Gokul Vidyasankar  gokul.vidyasankar@gmail.com

Please email John for more information.

PRINCE EDWARD ISLAND

Stratford

Stratford Pulmonary Fibrosis Support Group

Contact: Rosemary Matthews     902-626-7014     arsenault45@hotmail.com

This is strictly a support group meeting of patients and caregivers. 

The group is meeting on the 2nd Sunday of the month.

They can also be contacted on the PEI Pulmonary Fibrosis Facebook page. 

Until we can meet again face-to-face please contact Rosemary for more information and to register your email address for Zoom meetings.

NOVA SCOTIA

HALIFAX

Halifax Pulmonary Fibrosis Support Group

Contact: James Craig    902-229-3311     jamescraig2011@gmail.com

Until we can meet again face-to-face please contact James to register your email address and for information on Zoom meetings. 

Meetings are on  3rd Wed of every month

SYDNEY

Sydney Pulmonary Fibrosis Support Group

Contact: Pat Popwell    902-565-9068  ppopwell54@gmail.com
135 Wilson Road
Cape Breton NS  B1E 1L1

Zoom meetings  last Thursday of each month
Time: 7:00 p.m. to 8:30 p.m.

Please contact Pat to register your email address for the Zoom meetings.