The following ILD/PF Support Groups meet on a regular basis.
If you’re interested in starting a support group and would like more information, please check out the Patient Education & Support Group Toolkit
IMPORTANT: Because of COVID-19, CPFF is cancelling all in-person support groups meeting until further notice. Many groups have chosen to meet virtually. Connect with the contact person of the group nearest to you to find out if they are meeting virtually. For those who would like the option of conducting a virtual support group meeting, please contact Sharon Lee at sharon@cpff.ca
BRITISH COLUMBIA
Vancouver Pulmonary Fibrosis Support Group
Contact: Fran Schooley
FSchooley@providencehealth.bc.ca
phone: 604-806-8818 press 2
Until we can meet again face-to-face please contact Fran for information on Zoom meetings.
Vancouver Island Pulmonary Fibrosis Support Group
Meetings are monthly
First Monday of every month
Contact: Dr. Holly Smith
Email address: hollyjeans@shaw.ca
Phone#: 250-245-3100
co-leader: Martha Hardy mjhardy@shaw.ca
Until we can meet again face-to-face please contact Holly or Martha for details on Zoom meetings.
ALBERTA
Calgary Pulmonary Fibrosis Support Group
Contact: Kirk Mathison 403-956-2813
Kirk.mathison@albertaHealthservices.ca
ILD Nurse Clinician, ILD Clinic, South | health Campus
Zoom meetings 1st Tuesday of each month 6.30-8.30pm
Zoom “chat” meetings 3rd Tuesday of each month 6.30-8.30pm
Contact Kirk to register your email address for these meetings.
Edmonton Pulmonary Fibrosis Support Group
Contact: Karen Fox 780-904-8222 pfgroup@ablung.ca
Zoom meeting coffee/chat on 1st Wednesday of each month at 11 am
Zoom meeting 3rd Wednesday of each month 7-8.30 pm
Send an email, introduce yourself and she will send you an invite to the Zoom meeting.
SASKATCHEWAN
Saskatoon Pulmonary Fibrosis Support Group
Contact: Peggy McKee RN, BSN, ILD Nurse Clinician, Chronic Disease Management
306-716-1615 peggy.mckee@saskhealthauthority.ca
Royal University Hospital 103 Hospital Drive, Saskatoon S7N 0W8
Zoom meeting 2nd Tuesday of each month 7pm – 8.30 pm
*No meetings in July and August
Please contact Peggy to register your email address for the Zoom meetings.
Manitoba
Winnipeg Pulmonary Fibrosis Support Group
Contact: Debbie Homik, RRT 204-955-8100 winnipeg.ipf@gmail.com
Secondary: Amy Webb
Zoom meetings: 1st Tuesday of each month, alternate afternoon & evening.
Please contact Debbie so she can send an invite and give you further information.
ONTARIO
Blenheim Pulmonary Fibrosis Support Group
Contact: Barbara Holden 519-401-6850 barbaraholden50@gmail.com
Until we can meet again face-to-face please contact Barbara to register your email address for the Zoom meetings.
Kingston Pulmonary Fibrosis Support Group
Contact: Lanny Klassen, email IPF.Kingston@gmail.com
Group leader: Lyn McCarthy respipf11@gmail.com
Until we can meet again face-to-face, please contact Lanny or Lyn to register your email address for Zoom meetings.
Dates vary but typically Fridays.
London Pulmonary Fibrosis Support Group
Contact: Tim Brady 519-652-7254 bradyt215@gmail.com
Please RSVP by contacting Tim Brady either by phone or email if you are interested in attending.
Until we can meet again face-to-face, please contact Tim to register your email address for the Zoom meetings and for more information.
Hamilton Pulmonary Fibrosis Support Group
Contact: Tim Brady bradyt215@gmail.com
Until we can meet again face-to-face please contact Tim to register your email address for Zoom meetings.
Niagara Pulmonary Fibrosis Support Group
A support group for those diagnosed with Idiopathic Pulmonary Fibrosis (IPF). Adults and their partners/family members of all afflicted with the disease are welcome, there is no charge to participate.
Program Offerings:
Advocacy, education and moral support in a non-medical environment
Contact:
Jack Rapattoni 905-708-2471 gianni4244@gmail.com
Dan Meloche 905-227-2214 danmeloche@hotmail.ca
Until we can meet again face-to-face please contact Jack or Dan for information on Zoom meetings
Ottawa Pulmonary Fibrosis Support Group
Contact: Roberto Zapata
roberto@cpff.ca
Until we can meet again face-to-face please contact Roberto to register your email address for Zoom meetings and for more information.
Sarnia Pulmonary Fibrosis Support Group
Contact: Tim Brady 519-652-7254 bradyt1215@gmail.com
Until we can meet again face-to-face please contact Tim to register your email address for Zoom meetings and for more information.
York Region South Pulmonary Fibrosis Support Group
Virtual Support Group during COVID-19
Contact: Sharon Lee
Please RSVP to sharon@cpff.ca
Secondary: mandy.ettinger@uhn.ca
Group meets 2nd Thursday of every month.
- Jan 8, 2021
- Feb 12, 2021
- Mar 11, 2021
- Apr 8, 2021
- May 13, 2021
- Jun 10, 2021
- Jul 8, 2021
- Aug 12, 2021
- Sep 9, 2021
- Oct 7, 2021
- Nov 11, 2021
- Dec 9, 2021
Toronto Pulmonary Fibrosis Support Group
Contact: Mandy Sivananthan, NP, MN, BScN
mandy.ettinger@uhn.ca
Until we can meet again face-to-face please contact Mandy for information and to register your email address for Zoom meetings
NEW BRUNSWICK
Moncton Pulmonary Fibrosis Support Group
Contact: Amanda Babineau 506-869-283 amanda.babineau@vitalitenb.ca
This is a bilingual support group meeting of patients and caregivers.
Il s’agit d’une réunion de groupe de soutien bilingue de patients et de soignants.
Until we can meet again in person please contact Amanda to register for Zoom meetings
Zoom Meetings:
Wednesday, October 13th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5EufuqppjwjGNVn4aCHpDGK1J6oBUbc-pyL
Wednesday, November 17th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5Eod-6hrTosG9FYEcKK0QRq9wRxl27q-qyw
Wednesday, December 15th at 10:30 am:
https://gnb.zoom.us/meeting/register/u5wqce2hqzwiGN09hg-v9vr6LuKDxo9LmgQo
Wednesday, January 19th at 10:30AM: https://gnb.zoom.us/meeting/register/u5EsduCorzkvHNUzCQOIEba96QSlZjwulxiD
Wednesday, February 16th at 10:30AM: https://gnb.zoom.us/meeting/register/u5AtfumgqDMiHNGcTUV55jhiO8kRrUR1uiyD
Wednesday, March 16th at 10:30AM: https://gnb.zoom.us/meeting/register/u5IsduGvqDsuGNBJ6qEZRQATXvTuZwbjVBct
Wednesday, April 13th at 10:30AM: https://gnb.zoom.us/meeting/register/u5UrduqrTwqE9zwfrM6468Hn7QWeztqkuxS
Wednesday, May 18th at 10:30AM:
https://gnb.zoom.us/meeting/register/u5EpduCspzovE9XQIKj4DdTe-l5gFzcohTDg
Wednesday, June 15th at 10:30AM: https://gnb.zoom.us/meeting/register/u5Iqc6qrzoqGtBVIgRzisyzj7ckgwOXvja9
NEWFOUNDLAND
St. John’s Pulmonary Fibrosis Support Group
Dr. Gokul Vidyasankar gokul.vidyasankar@gmail.com
Please email Gokul for more information.
PRINCE EDWARD ISLAND
Stratford Pulmonary Fibrosis Support Group
Contact: Rosemary Matthews 902-626-7014 arsenault45@hotmail.com
This is strictly a support group meeting of patients and caregivers.
The group is meeting on the 2nd Sunday of the month.
They can also be contacted on the PEI Pulmonary Fibrosis Facebook page.
Until we can meet again face-to-face please contact Rosemary for more information and to register your email address for Zoom meetings.
NOVA SCOTIA
Halifax Pulmonary Fibrosis Support Group
Contact: James Craig 902-229-3311 jamescraig2011@gmail.com
Until we can meet again face-to-face please contact James to register your email address and for information on Zoom meetings.
Meetings are on 3rd Wed of every month
Sydney Pulmonary Fibrosis Support Group
Contact: Pat Popwell 902-565-9068 ppopwell54@gmail.com
135 Wilson Road
Cape Breton NS B1E 1L1
Zoom meetings last Thursday of each month
Time: 7:00 p.m. to 8:30 p.m.
Please contact Pat to register your email address for the Zoom meetings.