Current Initiatives

August and September 2021

Help us advocate for expanded access to nintedanib

Next month, as part of Pulmonary Fibrosis Awareness Month, the Canadian Pulmonary Fibrosis Foundation, will be sending an email to provincial health ministers and drug plan managers across the country, to advocate for access to nintedanib (Ofev) for all ILD patients who would benefit, not only those with IPF.

You can read the full text of the email CPFF in the pdf below.

To encourage action by these elected officials and public servants, we are asking you, as a member of our PF Community, to send an email to your MPP or MLA to encourage them to contact their government’s health minister to take action on our request.

You can find a sample email below – as a WORD document. Please cut and paste the text as you see fit into an email addressed to your MLA/MPP from your personal email. Please cc: Sharon@cpff.ca, so we have a record of any responses from elected representatives.

You can usually find the name and email address of your MPP or MLA by searching “your province” and “list of MPPs or MLAs” online.

If you have IPF and currently have access to Ofev, your voice can be particularly influential if you share what access to this treatment has meant to you – and would to others.

Please take a few minutes to add your voice to our national campaign to improve the lives of so many more in our PF Community. Together, our voice is louder and  stronger!

CPFF email to provincial health ministers and drug plan managers

Sample email to your MPP or MLA