In the News

June 10, 2022. CTV News Atlantic. News release.

“At 76 years old, Halifax’s John Dennis became the oldest Maritimer to receive a lung transplant. Now, at the age of 77, he’s giving back by bicycling 700 kilometres around Prince Edward Island to raise money for pulmonary fibrosis research.”  Read the segment and watch the video.

January 28, 2021. Toronto Sun. Sponsored article.

“No time to waste for Canadians living with interstitial lung diseases.” Includes link to Read the article.

January 27, 2021. Vancouver Sun. Sponsored article.

“No time to waste for Canadians living with interstitial lung diseases.” Includes quote from Sharon Lee, Executive Director, CPFF and link to Read the article.

January 27, 2021. Edmonton Journal. Sponsored article.

“The University Hospital Foundation partners to find healthcare solutions for Albertans living with PF-ILD.” Read the article.

September 16, 2020. CTV Morning Live Saskatoon. TV interview

CPFF Chair Kirk Morrison is interviewed about Pulmonary Fibrosis Awareness Month 2020. Watch the interview.

September 13, 2020. Pick up of CPFF news release.

The website published the CPFF news release for Pulmonary Fibrosis Awareness Month: “Coronavirus Presents Extra Challenges for Pulmonary Fibrosis Patients.” Read the article.

May 25, 2020. News release from Boehringer Ingelheim, Burlington, Ontario

Health Canada has approved the use of nintedanib (OFEV®) in patients with a broad range of progressive fibrosing interstitial lung diseases (ILDs) other than idiopathic pulmonary fibrosis (IPF). The drug has been used to treat IPF patients in Canada for several years.

Read more:

April 19, 2020. Global News. TV news feature and website article.

Story and video about delays in transplant surgeries due to COVID-19, featuring John Dennis of Halifax, who has IPF and is awaiting a lung transplant.

Read the article and view the video.

February 29, 2020. Global News Morning Calgary TV interview about PF, Calgary and Lethbridge, Alberta.

Dr. Charlene Fell and Greg Martin join Global News Morning Calgary on Rare Disease Awareness Day to discuss living with Idiopathic Pulmonary Fibrosis and what it means to have a day dedicated to people suffering from uncommon illnesses.

Watch the interview.

December 15, 2019. Article on, Halifax, NS.

An online article about the challenges facing people living with IPF with references to a recent report from Roche Canada and CPFF.

Read the article.

November 20, 2019. News release from Roche Canada, Mississauga, Ontario

New report from Hoffmann-La Roche Limited and the Canadian Pulmonary Fibrosis Foundation (CPFF) reveals major gaps in quality of care for Canadians with rare lung disease. Burden of Idiopathic Pulmonary Fibrosis in Canada report sheds light on barriers to treatment and resources for Canadians living with this debilitating condition. Read the full news release.

Read the full report.

October 9, 2019. News release from Boehringer Ingelheim, Burlington, Ontario

The company announces the results of a clinical trial that demonstrated the efficacy and safety of nintedanib (OFEV®) in patients with a broad range of progressive fibrosing interstitial lung diseases (ILDs) other than idiopathic pulmonary fibrosis (IPF). Read the news release.

September 26, 2019, The Lake Report, Niagara-on-the-Lake, Ontario

CPFF supporters are featured in a photo and article in this newspaper article on page 15 of the September 26 issue. See photo and story here.

September 9, 2019,, Calgary, Alberta

Abbie Clark visits Calgary city council and councillors blow bubbles and proclaim September as Pulmonary Fibrosis Awareness Month in the city. See photo and story here.

September 5, 2019, 770 CHQR, Calgary, Alberta

Abbie Clarke is interviewed about the upcoming Clarke Walk for Pulmonary Fibrosis for the Morning News Show with Gord Gillies and Sue Degell. Listen to the interview here.

August 28, 2019,, PEI

Lorraine MacKenzie of PEI was diagnosed with idiopathic pulmonary fibrosis in 2016. Her only option is to relocate to Toronto, one of the country’s most expensive cities to live in, for a lung replacement surgery. Read the full story here.

ChILD – Children’s interstitial lung disease


ELF recently published a new factsheet on children’s interstitial lung disease (ChILD) aimed at parents and carers.
ChILD is a term used to describe over 200 rare lung conditions that affect children. The factsheet explains what ChILD is, and how it is diagnosed and managed.

Download the factsheet.

Barb & Diane’s Jewellery

These two lovely retired ladies have supported CPFF over the last three years by making jewellery and selling them.  They just raised $200 from their retirement home, the Prince of Wales Manor in Ottawa.

Read the news article here

Great news for IPF patients in British Columbia!

CPFF is thrilled to announce that effective February 6, 2018, both OFEV® (nintedanib) and Esbriet® (pirfenidone) has been listed by BC PharmaCare under Special Authority criteria for the treatment of mild to moderate idiopathic pulmonary fibrosis (IPF) in adult patients. Read the full criteria for OFEV® here and Esbriet® here.

There has been a significant amount of time and effort put in by CPFF and other stakeholders to make clear the significant need for access to these treatments in the province of British Columbia. We are thankful to BC Pharmacare for making this positive decision to provide this important treatment to patients in the province who need it.

Read the letter from Mitch Moneo, Assistance Deputy Minister, British Columbia Ministry of Health.

Niagara Pulmonary Fibrosis Support Group, January 18, 2018

For those that live in the Niagara, ON area, there is a new support group that will hold it’s first meeting on January 18, 2018.

Niagara-on-the-Lake Community Centre
14 Anderson Lane NOTL, ON

Refreshments will be served. For more information and to register, email Terry Hardy at

Sad News from the Irish Lung Fibrosis Association, August 27, 2017

We are sad to have to inform you that the esteemed Chairman of the Irish Lung Fibrosis Association, Terence Moran, has passed away suddenly. His Irish community is shocked and deeply upset by the terrible news and are heartbroken for Terence’s family. Terence was one of ILFA’s founding members and Chairman of ILFA since the charity was established in 2002 in memory of his best friend, Fergus Goodbody. Robert Davidson had the good fortune to meet Terence in Dublin. He will be missed.

Breathing New Life Into IPF Treatments

Robert Davidson was diagnosed with IPF in 2007. Since then, he’s made it his mission to encourage Canadians to get screened, diagnosed and treated early. (Macleans, November 17, 2016)

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New data demonstrate sustained long-term efficacy of OFEV® on slowing disease progression and safety in patients with IPF

An interim analysis of the INPULSIS®-ON extension trial has confirmed the efficacy and safety of OFEV® (nintedanib) previously observed in the INPULSIS® trials. (September 29, 2015)

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New treatment offers hope for an incurable disease

New drug slows lung disease idiopathic pulmonary fibrosis by 50 per cent. – The Hamilton Spectator (ON – August 24, 2015)

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Greater hope for a longer life

The approval by Health Canada of a new drug to treat people with idiopathic pulmonary fibrosis (IPF) is a step closer to one day finding a cure. – Brant News (ON – July 20, 2015)

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New drug for IPF gives patients hope

It’s just a small capsule, but the power a new drug called OFEV has to create hope for patients living with Idiopathic Pulmonary Fibrosis (IPF) is so much bigger than what would fit in the palm of your hand.
“I thank God for these drugs. That is what gives me hope,” said Jacqui Bowick-Sandor of Smiths Falls who was diagnosed with IPF in 2011. – Inside Ottawa Valley (ON – July 15, 2015)

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Features Robert Davidson and local Stratford resident and IPF patient advocate Garth Matthews. The article effectively outlines Garth’s daily struggle of living with IPF. – The Guardian (PEI – Dec. 18, 2014)
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CPFF President Robert Davidson and local IPF patient Garth Matthews are featured and interviewed right after their meeting with Minister of Health Doug Currie. – CBC Compass (PEI – Dec. 18, 2014)

Features Calgary resident and IPF patient advocate, Dick Martin and his physician, Dr. Charlene Fell. Dick is interviewed as he is taking his second dose of Esbriet treatment in Dr. Fell’s office. – CTV News Calgary (AB – Dec. 11, 2014)

Report highlights the funding announcement made in November regarding Alberta’s coverage of Esbriet under the Short Term Exceptional Drug Therapy (STEDT) program. IPF Patient Advocate Dick Martin is quoted that this news is a great relief. – 660 News CFFR-AM (AB – Dec. 2, 2014)

Featuring IPF patient advocate, Harold Tendler. When Harold first started taking Esbriet a year ago, he was paying $2,900 for a four week course of the treatment. However, due to the update in Saskatchewan’s Drug Plan as of November 1st, Esbriet is being covered and Harold paid a fraction of the cost at $492 for his latest course of treatment. – The Assiniboia Times (SK – Nov. 28, 2014)
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Featuring IPF patient advocate, Barbara Barr and CPFF president and founder, Robert Davidson, the article highlights many of the recent announcements for the IPF community. Summarizing the journey Ontario IPF patients have endured from the Health Canada approval in 2012 to the negative CDR recommendation, the article also highlights the rentless advocating for public funding by IPF patients, caregivers, physicans and other healthcare professionals that led to Ontario government leading, and other provinces following, to provide access to Esbriet. – King Weekly Sentinel (ON – Nov. 27, 2014)
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LUNG HEALTH MONTH — NOVEMBER 2014 We recently participated in Mediaplanet Canada’s Lung Health campaign where we raised awareness about the many struggles of living with IPF, for both patients and caregivers. The piece highlights the CPFF’s “Take a Breather” Caregiver Recognition program, which honours caregivers for their dedication and strength. Patient advocate Barbara Barr was featured, sharing her story and connection to IPF,along with her husband Malcolm Haylock, a 2014 “Take a Breather” recipient,. The campaign was distributed through the Toronto Star’s home and business newspapers on November 13th 2014 and is published online. For the full campaign:
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Oakville’s Rob’s Ride nets more than $20K for Canadian Pulmonary Fibrosis Foundation. – Oakville Beaver (ON – Nov. 7, 2014)
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New Brunswick resident and IPF patient advocate, Doug Greene describes the struggles of living with IPF like having to carry an oxygen with him at all times and the fact that he is not suitable for a lung transplant at his age. Esbriet is noted as the only available treatment, as it effectively slows the scarring of the lungs, is now available on the New Brunswick Prescription Drug Plan. – Telegraph-Journal (NB – Nov. 3, 2014)
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Important series on orphan drugs – part 2 of the series features IPF patient advocate Harold Tendler on Global Regina (SK – Oct. 30, 2014)
Watch Here

Fighting the good fight: Daughter works tirelessly to get treatment for ailing mother – National Post (ON – Oct. 27, 2014)
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Promising treatment gives hope to lung disease sufferer – National Post (NB – Oct. 20, 2014)
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AVR 97.7 (NB – Oct. 16, 2014)

Patient fights lung disease — and government red tape – National Post (ON – Oct. 14, 2014)
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Breathing a sign of relief – National Post (ON – Sept. 30, 2014)
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Dr. Charles Chan, an IPF researcher and respirologist, believes the outlook for IPF patients is improving and shares insights on how to better managing this challenging disease.
The video, along with an introduction by Dr. Marla Shapiro in her segment Living With and Managing Idiopathic Pulmonary Fibrosis, aired on September 27th (Toronto) on CTV’s Canadian Health & Family.
Watch Here

Rose McGowan provides a breath of awareness for fatal lung disease – Metro News (Sept. 23, 2014)
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Week-long fundraiser shows power of a smile – (Sept. 22, 2014)
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Breakfast Television (BT) on City TV Toronto (Sept. 19, 2014) – Rose McGowan media launch for #kissIPFgoodbye campaign
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The Social CTV Toronto (Sept. 18, 2014) – Rose McGowan media launch for #kissIPFgoodbye campaign
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KiSS 92.5 FM (Sept. 18, 2014) – Rose McGowan media launch for #kissIPFgoodbye campaign

Morning Show Global Toronto (Sept. 18, 2014) – Rose McGowan media launch for #kissIPFgoodbye campaign
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Canada AM CTV Toronto (Sept. 18, 2014) – Rose McGowan media launch for #kissIPFgoodbye campaign
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Rose McGowan aims to end idiopathic pulmonary fibrosis – Toronto Star (Sept. 18, 2014)
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Health Report – 680 News CFTR-AM (ON – Sept. 12, 2014)

Toronto General helping patients cope with rare IPF lung disease – City Centre Mirror (Sept. 18, 2014)
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Province to help pay for costly drugs – Brantford Expositor (ON – Sept. 16, 2014)
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Hoping for breathing room; Corner Brook woman with rare lung disease lobbying for drug funding – The Western Star (NL – Sept. 8, 2014)
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Bowmanville Woman Fights For Drug To Save Her Life – Channel 12 CHEX TV (ON – Sept. 3, 2014)
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