PF Caregivers
Family members, partners, friends, and neighbours shoulder much physical and emotional support for people living with pulmonary fibrosis (PF).
Finding ways to cope and thrive as a care partner is vital for you and the health of your loved one. CPFF is committed to supporting you as a caregiver and shining the spotlight on your needs and the needs of PF patients.
Cope and Thrive as a Care Partner
CPFF Virtual Caregiver Support Groups
Demands on caregivers are intense. Connecting with other caregivers who share similar experiences can be helpful. Meet virtually with other caregivers across Canada to share ideas and support one another. Register to secure your spot.
Caregiver Groups & Organizations
Find national and local caregiver programs, webinars, stories, workplace best practices and tips, funding, research reports, advocacy, and more.
Carers Canada
A national coalition dedicated to increasing recognition and support for caregivers.
Learn More
Caregivers Alberta
Providing resources, mental health support, and education.
Learn More
Family Caregivers of British Columbia
Providing access to information, education, and support.
Learn More
The Ontario Caregiver Organization
Being a point of access to information and support.
Learn More
L’appui pour les proches aidants
Funding services for caregivers across Quebec.
Learn More
Centre de recherche et d’expertise en gérontologie sociale.
Bringing evidence-informed caregiver practices.
Learn More
Caregivers Nova Scotia
Providing programs, services, and strong advocacy.
Learn More
Eastern Health
Supporting caregivers in making informed choices.
Learn More
Young Caregivers Association
Empowering young caregivers to achieve their full potential.
Learn More
Educational Videos and Webinars
Mental Health: Living Beyond Your Diagnosis
Dr. Elisabeth Saxton, clinical psychologist, has worked with individuals managing chronic pain and illness for over a decade. She leads a discussion focused on improving mental health and living beyond a PF diagnosis.
Coping with Loss and Change
Kamara Tayo-Jones, Social Work Therapist discusses coping strategies for loss and change.
CPFF Documentary – Breathless for Change
This documentary explores the courage and resilience of people living with PF and uncovers the barriers to accessing equitable healthcare for treatment and disease management.
So you have been diagnosed with pulmonary fibrosis…what’s next?
If you or someone you care about is living with pulmonary fibrosis this is a must-watch explainer video that describes what PF is, what you can expect and how to manage your disease.
Articles, Stories & More
Caregiving for a husband with slow progressing PF
Carolyn Morton, 74, has seen her husband Dale, 76, cope quite well during his 11-year…
Breathless for Change Report
CPFF spoke with both patients and caregivers to understand their experiences through the PF journey…
Pulmonary Fibrosis Patient Guide
Learn about pulmonary fibrosis signs, symptoms and causes. Plus, get insights on PF diagnosis, treatment,…
Keeping active and engaged helps this caregiver keep giving
For 15 years Jack Pal and his wife Pat, now 79 and 78 respectively, hiked…
Family moves closer together and becomes a care team
Brian Hurding, 74, is blessed to be surrounded by women, two adult daughters Lorraine and…
Celebrate Someone Who Supports You
The first Tuesday of April has been unanimously adopted by the Members of Parliament of Canada to recognize the importance of the “invisible” unpaid worker.
Send a free thank you e-card
If you’re living with pulmonary fibrosis and have been supported by someone in your family or community, show them your appreciation.