PF Caregivers
Family members, partners, friends, and neighbours shoulder much physical and emotional support for people living with pulmonary fibrosis (PF).
Finding ways to cope and thrive as a care partner is vital for you and the health of your loved one. CPFF is committed to supporting you as a caregiver and shining the spotlight on your needs and the needs of PF patients.
Cope and Thrive as a Care Partner
CPFF Virtual Caregiver Support Groups
Demands on caregivers are intense. Connecting with other caregivers who share similar experiences can be helpful. Meet virtually with other caregivers across Canada to share ideas and support one another. Register to secure your spot.
Caregiver Resources
Find national and local caregiver programs, webinars, stories, workplace best practices and tips, funding, research reports, advocacy, and more.
These resources have been aggregated to support family members, partners, friends, neighbours, and any other people who shoulder the physical and emotional support for people living with pulmonary fibrosis.
Educational Videos and Webinars
CPFF Documentary – Breathless for Change
This documentary explores the courage and resilience of people living with PF and uncovers the barriers to accessing equitable healthcare for treatment and disease management.
Finding Hope & Healing as a PF Caregiver
In this audio video, Sandi talks about living with pulmonary fibrosis (PF) from the perspective of a caregiver, sharing her heartfelt story of fear, courage, acceptance, and hope as she supports her dad in his new normal.
Grieving What Was & Finding Acceptance for What Is
As a caregiver, Heidi shares her journey through her husband’s pulmonary fibrosis diagnosis, medications, support groups, preparing for lung transplantation, and finding joy wherever they can.
Mental Health: Living Beyond Your Diagnosis
Dr. Elisabeth Saxton, clinical psychologist, has worked with individuals managing chronic pain and illness for over a decade. She leads a discussion focused on improving mental health and living beyond a PF diagnosis.
Coping with Loss and Change
Kamara Tayo-Jones, Social Work Therapist discusses coping strategies for loss and change.
So you have been diagnosed with pulmonary fibrosis…what’s next?
If you or someone you care about is living with pulmonary fibrosis this is a must-watch explainer video that describes what PF is, what you can expect and how to manage your disease.
Articles, Stories & More
Be alert for early signs, warns caregiver Bill
Looking back now, Bill Bradshaw, 76, recalls the early signs of his wife Jackie’s pulmonary…
Caregiving for a husband with slow progressing PF
Carolyn Morton, 74, has seen her husband Dale, 76, cope quite well during his 11-year…
Breathless for Change Report
CPFF spoke with both patients and caregivers to understand their experiences through the PF journey…
Pulmonary Fibrosis Patient Guide
Learn about pulmonary fibrosis signs, symptoms and causes. Plus, get insights on PF diagnosis, treatment,…
Keeping active and engaged helps this caregiver keep giving
For 15 years Jack Pal and his wife Pat, now 79 and 78 respectively, hiked…
Family moves closer together and becomes a care team
Brian Hurding, 74, is blessed to be surrounded by women, two adult daughters Lorraine and…
Celebrate Someone Who Supports You
The first Tuesday of April has been unanimously adopted by the Members of Parliament of Canada to recognize the importance of the “invisible” unpaid worker.
Send a free thank you e-card
If you’re living with pulmonary fibrosis and have been supported by someone in your family or community, show them your appreciation.