Who We Are
The Canadian Pulmonary Fibrosis Foundation (CPFF) is a registered Canadian charity established to provide hope and support for people affected by pulmonary fibrosis (PF). Our charitable registration # is 850554858RR0001.
We work closely with patients and caregivers, medical experts, and governments. With the support of dedicated volunteers, staff and our sponsors and donors, we aim to achieve our mission and vision.
We’re Breathless for Change
A relatively common “rare” disease, pulmonary fibrosis affects about 30,000 people in Canada. This number is growing. There is no cure, although there are treatments to slow the progress of the disease. The prognosis for PF is still grim, with most individuals dying within three to five years following diagnosis. And diagnosis can be difficult, taking up to a year or more.
Research is the best prospect for improved treatments and an eventual cure. CPFF offers a community of hope and support to anyone affected by pulmonary fibrosis, so that no one needs to face this disease alone.
CPFF’S Four Pillars of Focus
- Support patients and caregivers affected by pulmonary fibrosis;
- Educate and raise awareness about pulmonary fibrosis among Canadians;
- Raise funds to invest in research; and
- Represent Canadians affected by pulmonary fibrosis to governments, healthcare professionals, the media, and the public
Creating hope and giving a voice to the pulmonary fibrosis community.
Educate and Raise Awareness
The CPFF aims to educate patients, their families, and the general public about pulmonary fibrosis through our website, printed materials, support groups and advocacy initiatives.
Support Patients and Caregivers
You are not alone on this journey. The CPFF supports patients and families through in-person and on-line support groups across Canada.
Support Research that Benefits Patients
The CPFF supports Canadian research that will benefit patients through annual research grants. The CPFF also supports the training of the next generation of pulmonary fibrosis medical specialists through the Robert Davidson Fellowship program, leading to improved access to care and more research into pulmonary fibrosis.
Give a Voice to Patients
Through our work with local, provincial and federal health governments and collaborations with other patient groups, as well as our contacts with the pharmaceutical industry, oxygen vendors and the medical community, the CPFF advocates for the recognition and the rights of pulmonary fibrosis patients to access specialized healthcare, medications, oxygen, pulmonary rehabilitation, and support groups.
The CPFF Logo
The CPFF’s logo is an open blue and red fan. The fan itself represents movement of air. The changing colours symbolize the oxygenation of blood that is necessary for survival. Bright red is the colour of oxygenated blood and blue is un-oxygenated blood.
The Canadian Pulmonary Fibrosis Foundation (CPFF) was established in August 2009 by its Founder Robert Davidson and the first CPFF website launched in February 2010. Learn more about our history.
CPFF Board of Directors
The CPFF Board of Directors sets policies for the foundation and are responsible for the effective and efficient operations of the organization and for its financial health. The members of the Board are all volunteers and come from diverse backgrounds and different parts of the country. Learn more.
CPFF Medical Advisory Board
The CPFF Medical Advisory Board (MAB) is comprised of some of Canada’s most highly respected respirologists and pulmonary fibrosis specialists. Its primary goal is to support the CPFF’s mission to fund research, provide patient support, and raise awareness of pulmonary fibrosis. Learn more.