Canadian Pulmonary Fibrosis Foundation
Here are resources for members of the media. If you have any questions or wish to schedule an interview, please contact our media team.
CPFF Board of Directors
Executive Director, Canadian Pulmonary Fibrosis
Board Chair, Alberta, Canadian Pulmonary Fibrosis
Board Member, Canadian Pulmonary Fibrosis
Chair of CPFF Medical Advisory Council, Founding Chair of Canadian Thoracic Society’s Clinical Assembly on Interstitial Lung Diseases, Director of the University of Calgary Interstitial Lung Disease Program
Respirologist and Assistant Professor of Medicine in Respirology at Memorial University in St. John’s, Newfoundland.
Patients and Caregivers
Patient, Ontario, CPFF Board of Directors
Living with pulmonary fibrosis.
Extremely long road to diagnosis.
February 23, 2023
Canadians with a rare disease are at a disadvantage when it comes to healthcare
Rare diseases affect 1 in 12 or nearly 3 million Canadians
Many countries are starting to recognize that people with rare diseases face significant challenges accessing health care. Pulmonary fibrosis(PF)patients in Canada, experience the same reality. Diagnosis is lagging and access to treatment varies across the country, in part, due to a lack of awareness and understanding of this disease.
Rare diseases are defined as serious, chronic conditions that are debilitating or life-threatening. Tuesday, February 28 is Rare Disease Day. Though just another day on the calendar for some, for the more than 3 million Canadians suffering from a rare disease, and specifically, the 30,000 Canadians affected by PF, today is an incredibly important day. For people living with PF, it’s a day to speak up and spread awareness about this terrible disease, a day that can be a harbinger for hopeful things to come.
Rare Disease Campaign 2023 Events
Raising Awareness, Hope, and Funds
Contact our Media Team
If you have any questions or wish to schedule an interview, please contact us by calling: 604-716-4194 or by filling out the contact form.