Media Kit

Here are resources for members of the media. If you have any questions or wish to schedule an interview, please contact our media team.

CPFF Board of Directors

Executive Director, Canadian Pulmonary Fibrosis

Board Chair, Alberta, Canadian Pulmonary Fibrosis

Board Member, Canadian Pulmonary Fibrosis

Medical Professionals

Chair of CPFF Medical Advisory Council, Founding Chair of Canadian Thoracic Society’s Clinical Assembly on Interstitial Lung Diseases, Director of the University of Calgary Interstitial Lung Disease Program

Respirologist and Assistant Professor of Medicine in Respirology at Memorial University in St. John’s, Newfoundland.

Patients and Caregivers

Patient, Ontario, CPFF Board of Directors
Living with pulmonary fibrosis.

Patient, Ontario
Extremely long road to diagnosis.

Press Release

February 23, 2023

Canadians with a rare disease are at a disadvantage when it comes to healthcare

Rare diseases affect 1 in 12 or nearly 3 million Canadians

Many countries are starting to recognize that people with rare diseases face significant challenges accessing health care. Pulmonary fibrosis(PF)patients in Canada, experience the same reality. Diagnosis is lagging and access to treatment varies across the country, in part, due to a lack of awareness and understanding of this disease.

Rare diseases are defined as serious, chronic conditions that are debilitating or life-threatening. Tuesday, February 28 is Rare Disease Day. Though just another day on the calendar for some, for the more than 3 million Canadians suffering from a rare disease, and specifically, the 30,000 Canadians affected by PF, today is an incredibly important day. For people living with PF, it’s a day to speak up and spread awareness about this terrible disease, a day that can be a harbinger for hopeful things to come.

Download the press release.