Rare Disease Campaign
Rare Disease Campaign
Feb.28 – Mar.31
Your gift makes a difference.
Every Breath Counts. Let’s Raise Awareness
Rare Disease Campaign: February 28 – March 31
Nearly 3 million Canadians are living with a rare disease. Many face long journeys to diagnosis, limited treatment options, and the loneliness of feeling unheard.
Rare Disease Day is February 28. Throughout March, join us in raising awareness and support for people living with pulmonary fibrosis (PF) and connective tissue diseases that can lead to PF, because no one should face a rare disease alone.
We are changing lives
Canada’s leading voice for people living with Pulmonary Fibrosis. CPFF works tirelessly to raise awareness, hope and funds, because we are…
Early detection is vital to slowing progression of pulmonary fibrosis. Help us raise awareness among healthcare providers and the public. Support this campaign
Access to home oxygen therapy in Canada shouldn’t depend on where you live. Canada needs universal standardized access NOW. Support this campaign
Early Detection is Key
Since it’s a rare disease, PF is not top of mind for most family practitioners. The 2024 CPFF Patient and Caregiver Survey highlights that many patients wait two or more years for a confirmed diagnosis.
PF symptoms cannot be reversed by the treatment medication, only slowed down. More awareness by the public and medical professionals can result in earlier diagnosis so treatments can start sooner for patients at a less severe stage of the disease.
Living with a Connective Tissue Disease?
Know Your Risk of Pulmonary Fibrosis
Celebrating Rare Individuals
Despite challenges, people living with PF show amazing determination and courage. Explore patient and family stories and learn more about pulmonary fibrosis.
Pay Tribute to a Rare Individual
MAKE A DONATION TO SEND A TRIBUTE OR MEMORIAL CARD
