Patients & Caregivers


Pulmonary Fibrosis is life-changing
Pulmonary fibrosis can affect almost every part of your life

of people living with PF are not able to work or enjoy leisure or self-care activities as before

of caregivers spend at least 2 hours per day supporting someone with PF
Coping with change
Medical and Support Resources
When you were first diagnosed with pulmonary fibrosis, there’s a good chance you had never heard of this disease. It is a relatively unknown and rare disease with up to an estimated 30,000 people living with it in Canada. The CPFF resource library is full of advice and insights from PF medical experts, patients, and caregivers to help you throughout your journey.

Build your team
Encourage a family member or a friend to join your medical appointments. They can be a second set of ears to help you with daily activities down the road.
Your Team
Your team is everyone who will support you along your journey. Get to know your family doctor who will be your quarterback and the other healthcare pros who can help you.









Find Medical Care & Support Groups
Find a Family Doctor or Walk-in Clinic
There is no doubt that your family doctor (or nurse practitioner) is the gateway to accessing the health care system in your province or territory. Unfortunately, millions of Canadians do not have a primary care physician. CPFF has gathered some links that may help you to find a family physician, or a walk-in clinic, in your area.
General info
Health Insider: How to Find a Canadian Family Physician
Skip the Waiting Room is one way to find walk- in clinics in your area. They have up-to-date schedules, contact information, and let you book appointments online.
Provincial Resources
British Columbia
BC College of Family Physicians: Find a Family Doctor
Alberta
Alberta Health Services: Find a Doctor
Alberta Health Services: Walk-in Clinics
Saskatchewan
College of Physicians and Surgeons of Saskatchewan: Finding a Doctor
Manitoba
Manitoba Government: Family Doctor Finder
Winnipeg Regional Health Authority: Walk-in Clinics
Ontario
Ontario Government: Find a Family Doctor or Nurse Practitioner
Ontario Government: Walk-in Clinics
Quebec
Québec: Registering with a Family Doctor
Québec : Inscription auprès d’un médecin de famille
Québec: Knowing clinics that offer same-day or in the following days medical appointments
New Brunswick
New Brunswick Medical Society: Finding a Family Physician
https://www2.gnb.ca/content/gnb/en/corporate/promo/accessing-healthcare/be-matched.html
New Brunswick: Be matched with a family doctor or nurse practitioner
Newfoundland
Nova Scotia
Nova Scotia: Find a Family Physician or Other Primary Care Provider
Prince Edward Island
Prince Edward Island: Find a Family Doctor or Nurse Practitioner
Prince Edward Island: Walk-in Clinics
Northwest Territories
Northwest Territories Health and Social Services Authority: Regional Portals
Nunavut
Nunavut Community Health Centres
Yukon
CPFF Support Groups
Find a CPFF support group in your community
Provincial Resources: Medical Care and Support
Find resources in your province for pulmonary fibrosis medical care and support. Explore provincial resources.
Rehabilitation Programs
Living Well with Pulmonary Fibrosis, by Respiplus™ online rehabilitation program
ILD Respirologists
Lung Transplantation
Oxygen Therapy
Palliative Care
Medical Assistance in Dying (MAiD)
Patient Groups and Organizations
Canadian Thoracic Society (CTS)
Canadian Organization for Rare Disorders
National Organization for Rare Disorders (NORD)
Pulmonary Fibrosis Foundation (United States)
EURODIS (European Organisation for Rare Diseases)
Mesothelioma Guide (United States)
RareConnect.org (Partnership of EURODIS and NORD)
Papworth Hospital Interstitial Lung Disease service (United Kingdom)
Irish Lung Fibrosis Association (ILFA)
Longfibrose VZW (Belgium)
Lungenfibrose eV (Germany)
Ama Fuoridalbuio (Italy)
Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática (AFEFPI) (Spain)
Longfibrose NL (Netherlands)



