Patients & Caregivers
Pulmonary Fibrosis is life-changing
Pulmonary fibrosis can affect almost every part of your life
of people living with PF are not able to work or enjoy leisure or self-care activities as before
of caregivers spend at least 2 hours per day supporting someone with PF
Coping with change
Medical and Support Resources
When you were first diagnosed with pulmonary fibrosis, there’s a good chance you had never heard of this disease. It is a relatively unknown and rare disease with up to an estimated 30,000 people living with it in Canada. The CPFF resource library is full of advice and insights from PF medical experts, patients, and caregivers to help you throughout your journey.
Build your team
Encourage a family member or a friend to join your medical appointments. They can be a second set of ears to help you with daily activities down the road.
Your Team
Your team is everyone who will support you along your journey. Get to know your family doctor who will be your quarterback and the other healthcare pros who can help you.
Find Medical Care & Support Groups
CPFF Support Groups
Find a CPFF support group in your community
Rehabilitation Programs
Living Well with Pulmonary Fibrosis, by Respiplus™ online rehabilitation program
ILD Respirologists
Lung Transplantation
Oxygen Therapy
Palliative Care
Medical Assistance in Dying (MAiD)
Patient Groups and Organizations
Canadian Thoracic Society (CTS)
Canadian Organization for Rare Disorders
Pulmonary Fibrosis Foundation (United States)
Action for Pulmonary Fibrosis (United Kingdom)
European Pulmonary Fibrosis Federation
National Organization for Rare Disorders (NORD)
EURODIS (European Organisation for Rare Diseases)
Mesothelioma Guide (United States)
RareConnect.org (Partnership of EURODIS and NORD)
Papworth Hospital Interstitial Lung Disease service (United Kingdom)
Irish Lung Fibrosis Association (ILFA)
Longfibrose VZW (Belgium)
Lungenfibrose eV (Germany)
Ama Fuoridalbuio (Italy)
Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática (AFEFPI) (Spain)
Longfibrose NL (Netherlands)