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HOPE BREATHES HERE

For Canadians Living with Pulmonary Fibrosis

An online publication of the Canadian Pulmonary Fibrosis Foundation

2024 Newsletters

October 2024

October 2024

CPFF’s June newsletter issue is live! Get the latest news on community walks, AI search, cough research, new CPFF staff, and more …
September 2024

September 2024

CPFF’s June newsletter issue is live! Get the latest news on community walks, AI search, cough research, new CPFF staff, and more …
August 2024

August 2024

CPFF’s June newsletter issue is live! Get the latest news on community walks, AI search, cough research, new CPFF staff, and more …
Woman breathing through a straw

June 2024

CPFF’s June newsletter issue is live! Get the latest news on community walks, AI search, cough research, new CPFF staff, and more …
May 2024

May 2024

CPFF’s May newsletter issue is live! Spring into fresh insights from PF healthcare pros, and get new videos, GR updates, and French resources …
April 2024

April 2024

Our April Newsletter is out! Get the latest updates on new Robert Davidson fellows, insights on liquid oxygen, and an opportunity to celebrate the …
March 2024

March 2024

CPFF March Newsletter is here! Meet new CPFF staff, learn about chronic cough research, Rare Disease Campaign activities, advocacy initiatives, and more …
February 2024

February 2024

The Canadian Pulmonary Fibrosis Foundation (CPFF) is pleased to announce the appointment of Todd Georgieff as Chair of its Board of Directors during the …

2023 Newsletters

December 2023

December 2023

A message from our outgoing Board Chair After six years of volunteer service as the CPFF Board Chair, Kirk Morrison will be leaving the …
November 2023

November 2023

You did it! Participants gather for a photo at the Khan Family Walk for PF during Pulmonary Fibrosis Awareness Month in September. We all …
October 2023

October 2023

Breathing has to be a fundamental human right and equal for all Canadians CPFF has surveyed patients, caregivers, health professionals and oxygen providers to …
September 2023

September 2023

Embrace hope this September These participants are having their photo taken “on the farm” before the “Avonmore Run the Farm for PF,” last month …
Embrace hope

August 2023

CPFF Robert Davidson Fellowships fill a gap in ILD care After completing several research projects, Dr. Amanda Grant-Orser has finished her two-year CPFF Robert …
June 2023

June 2023

A unique case sparks a passion for ILD research and patient care Dr. Bohyung Min is just completing her one-year CPFF Robert Davidson Fellowship …
May 2023

May 2023

CPFF research investment surpasses $2 million CPFF is pleased to announce the two Robert Davidson fellowships for 2023-24. Dr. Kirsten Nesset, above, will be …
April 2023

April 2023

Today is National Caregiver Day Every person’s journey with PF is different, and so are the experiences of their family caregivers. Below are the …
Rare Heart

March 2023

Developing clarity in CT scan analysis for better PF diagnosis Dr. Daniel Marinescu completed a two-year, CPFF Robert Davidson Fellowship, last summer, and will …
Rare Inspiration

February 2023

People with rare diseases deserve equal access to health care CPFF is part of the global campaign to raise awareness of rare diseases and …

2022 Newsletters

2022-Breathless-for-Change-Report-Web

November / December 2022

CPFFs 2022 Pulmonary Fibrosis Awareness Month campaign wrapped up at the end of September. And once again, our joint efforts have achieved great results …
Family gathering for PF month.

October 2022

CPFFs 2022 Pulmonary Fibrosis Awareness Month campaign wrapped up at the end of September. And once again, our joint efforts have achieved great results …
Group of People posing for selfie

September 2022

It’s Pulmonary Fibrosis Awareness Month! While events and activities are well underway, it’s not too late to get involved in Pulmonary Fibrosis Awareness Month …
CPFF community walk

August 2022

Set up your own event, or support someone else’s, during Pulmonary Fibrosis Awareness Month in September. Whatever the challenge, Canadian Pulmonary Fibrosis (CPFF) supporters …
2022 CPFF Web Survey

June 2022

CPFF’s 2022 patient and caregiver survey is open for your responses until this Friday, June 10. Don’t miss this opportunity to share your experiences …
May 2022

May 2022

CPFF announces 2022-2023 Robert Davidson Fellowships Advancing research and developing more respiratory specialists to improve care, as well as expand access to care, for …
April 2022

April 2022

Help us get nintedanib for all who need it We are very pleased to share the news that Alberta became the first province on …
March 2022

March 2022

Celebrating rare individuals We are all unique individuals tied together by our dedication to a better life for people living with pulmonary fibrosis (PF) …
February 2022

February 2022

Let’s breathe hope into 2022 A message from Sharon Lee, Executive Director, CPFF For our first issue of Hope Breathes Here in 2022, I …

2021 Newsletters

December 2021

December 2021

Hope breathes here A message from CPFF Board Chair Kirk Morrison This has been another very challenging year as we dealt with the continued …
November 2021

November 2021

Upcoming webinar explains new x-ray technology that may detect PF earlier We know that one of the biggest challenges of pulmonary fibrosis is obtaining …
October 2021

October 2021

Thank you one and all! Despite the continuing restraints of a second year of the pandemic, this year’s virtual Pulmonary Fibrosis Awareness Month campaign …
September 2021

September 2021

Enjoy the benefits of getting involved in Awareness Month activities September is Pulmonary Fibrosis Awareness Month around the world, and the Canadian Pulmonary Fibrosis …
August 2021

August 2021

You are fully vaccinated against COVID-19. Now what? By now, we hope that most Canadians living with pulmonary fibrosis have been fully vaccinated, along …
June 2021

June 2021

CPFF awards two Robert Davidson Fellowships The CPFF Board of Directors and Medical Advisory Board is pleased to announce two Robert Davidson Fellowships for …
May 2021

May 2021

May, 2021 CPFF Fellow makes substantial contributions to ILD research In addition to caring for COVID-19 patients at Toronto General Hospital (TGH) for a …
April 2021

April 2021

Anti-fibrotic drugs and the COVID-19 vaccines and a new vaccine webinar The Canadian Pulmonary Fibrosis Foundation (CPFF) has reached out to the appropriate pharmaceutical …
March 2021

March 2021

Get vaccinated as soon as you can The Canadian Pulmonary Fibrosis Foundation has been receiving many inquiries from individuals with PF and their carers …
February 2021

February 2021

Barbara Barr-Haylock was a champion of knowledge for people with PF It is with great sadness that the Canadian Pulmonary Fibrosis Foundation (CPFF) Board …
January 2021

January 2021

Reflecting on 2020 As the new year begins, I am spending time thinking about the gratitude, regard and appreciation of the pulmonary fibrosis (PF) …

2020 Newsletters

December 2020

December 2020

Message from CPFF Board Chair, Kirk Morrison Kudos to Kirk Mathison for a great Calgary Support Group meeting on December 1! More than  50 …
November 2020

November 2020

Resources to help you through the second wave of COVID-19 As people have been heading back to work and school this fall, the second …
October 2020

October 2020

I’ve been diagnosed with pulmonary fibrosis… Now what? For anyone newly diagnosed with pulmonary fibrosis or their family member, Dr. Charlene Fell’s webinar is …
September 2020

September 2020

Make connections and enjoy September By Kirk Morrison, Chair, CPFF As we all know, September is Global Pulmonary Fibrosis Awareness Month. In a year …
August 2020

August 2020

We may be vulnerable, but we are also strongBy Sharon Lee, Executive Director, CPFF As Canada’s largest cities and smaller towns enter stage three …
June 2020

June 2020

Message from the Board Chair Kirk Morrison Just thought I would let everyone know, that despite the pandemic, the CPFF Board of Directors have …
May 2020

May 2020

May, 2020 New resources answer your questions about PF and COVID-19 CPFF has two new webinars, featuring expert speakers, to help you manage during …
April 2020

April 2020

A Message from the Executive Director Dear Pulmonary Fibrosis Community, I want to start by offering my sincere thanks and appreciation to all of …
March 2020

March 2020

Study gives researchers a first overview of PF in Canada A recent study of 1,285 patients, older than 18, who enrolled in the Canadian …

2019 Newsletters

May 2019

May 2019

Founder Robert Davidson leaves a legacy with CPFF Robert Davidson, CPFF Founder It is with great sadness that we announce the passing of Founder …
April 2019

April 2019

Advocating for you Sharon Lee, Executive Director, CPFF meets with MPP John Fraser With a new government in Ontario, CPFF has been busy this …
March 2019

March 2019

A Message from Kirk Morrison, CPFF President: All,It’s hard to believe that we’re drawing near the end of the first quarter of 2019! I’ve …
December 2019

December 2019

New report reveals major gaps in care for Canadians with IPF The current state of care for Canadians living with idiopathic pulmonary fibrosis (IPF) …
November 2019

November 2019

Study investigates the association between muscles and ILD A recent UBC study of 115 people with Interstitial Lung Disease (IDL), including 40 people with …
October 2019

October 2019

Exploring the mysteries of the cellular pathways to fibrosis A recently completed study by Dr. Kjetil Ask and PhD student Olivia Mekhael sheds new …
September 2019

September 2019

Message from the President Hard to believe that the summer is over, and that Pulmonary Fibrosis Awareness Month is kicking off! Not sure if …
August 2019

August 2019

Two research grants announced The Canadian Pulmonary Fibrosis Foundation is pleased to announce two, $20,000 research grants for 2019-2020 and gratefully acknowledges the Parkash …
June 2019

June 2019

CPFF research funding totals more than $1 million The Canadian Pulmonary Fibrosis Foundation’s research investment total tops $1 million with the funding of two, …