There are so many great reasons to join a Walk for PF

CPFF’s Hope Breathes Here Walks for Pulmonary Fibrosis are about so much more than a walk in the park. They are about supporting our Community, where many struggle to breathe, and to walk. If you cannot manage the actual walking, you are very welcome to attend a Walk event to cheer on participants and to meet up with friends and family.
We all walk for breath, we walk for change, and we walk together so no one faces PF alone.
Everyone walks for their own special reason, but together, our shared journey reminds us we’re stronger side by side. Join us from June to October at a CPFF Walk in your community. Register today!

Watch our 2026 Walk video
Step into the heart of CPFF Hope Breathes Here Walks for Pulmonary Fibrosis. This video shows our incredible community coming together to support people affected by this challenging lung condition. Feel the energy, see the smiles, and see the hope and connection you can share.
Meet the families and volunteers whose stories show the heart of Hope Breathes Here Walks. Read more.
Events
Happening Soon
Jun
15
7 PM to 8 PM EDT
National Pulmonary Fibrosis Caregiver Support Group
Jun
16
3 PM to 4 PM EDT
National Pulmonary Fibrosis Patient Support Group
Jun
27
10 AM to 2 PM MDT
Edmonton Walk for PF
Jun
28
1 PM to 5 PM EDT
Harmony and Hope for PF
Jul
6
7 PM to 8 PM EDT
National Pulmonary Fibrosis Caregiver Support Group
Jul
6
7 PM to 8 PM EDT
Groupe de soutien national virtuel en français
Jul
7
3 PM to 4 PM EDT
National Pulmonary Fibrosis Patient Support Group
Jul
7
7 PM to 8 PM EDT
National Pulmonary Fibrosis Patient Support Group
For events happening between July 8 and our next newsletter, August 5, and beyond, visit the Events calendar on our website.
Dr. Malcolm Sherwood is CPFF’s 2026-2027 Robert Davidson Fellow

Dr. Malcolm Sherwood will undertake his fellowship at the University of Toronto (U of T) and the University Health Network’s (UHN) ILD Research program under the clinical supervision of Dr. Shane Shapera with research supervision from Dr. Jolene Fisher and Dr. Lee Fidler.
During his fellowship he will work towards a Master’s degree in Clinical Epidemiology and Research Management through Western University, which includes both course work and a year-long capstone research project. This project will also be his primary research study under the fellowship.
The question that this project will answer is whether patients at ILD centres across the world should be invited to participate in their multidisciplinary case discussion as standard of care. The research will assess:
- Patient perceptions of shared decision-making in multidisciplinary ILD discussions,
- Provider perceptions of patient involvement in multidisciplinary rounds, and
- Track changes in diagnostic and treatment outcomes resulting from patient participation.
Longer term, Dr. Sherwood plans to bring excellent care to ILD patients, particularly in underserved areas of Canada, and to pursue an academic research career focused on improving the quality of care delivered to ILD patients, regardless of geographic location.
Join the Ottawa PF Community for an afternoon of harmony and hope

The CPFF Ottawa Support Group invites you and your friends to join them for Harmony & Hope for PF, a community fundraiser with music, connection, and heart in support of the Canadian Pulmonary Fibrosis Foundation (CPFF).
The fun-filled event will be held Sunday, June 28, from 1 to 5 p.m. at the Southside Tap and Grill at 4 Lorry Greenberg Dr., Ottawa.
Tap your toes to the live music, share some laughs and support an important cause with an amazing community. And, maybe you’ll score a door prize!
Whether you attend in support of a loved one living with PF, or simply want to make a difference, you’ll help bring hope to those affected by this disease.
Come share an afternoon of harmony, encouragement, and purpose and help us raise vital funds that support education, advocacy, research, and care for people living with pulmonary fibrosis.
Save your spot! Registration is not mandatory, but is appreciated. Drop-ins are welcome.
Patient and Caregiver Stories

The Joly family’s journey with PF
Dive into the inspiring journey of the Joly family as they navigate their mother Carol’s rheumatoid arthritis and pulmonary fibrosis conditions. Witness Carol’s incredible spirit, from winning an Army Run at 72 to facing the challenges of declining health. This is a story of family, love, and the power of making every breath count.
Discover how the Joly family rallied together, learned to adapt, and ensured their mother’s comfort and happiness. From reluctant oxygen use to a vibrant social life in rehab, Carol’s story is filled with unexpected moments and valuable lessons.

The Phillips family’s journeys with PF
The Phillips family has been profoundly affected by pulmonary fibrosis (PF), with many family members succumbing to the disease, including Dave Phillips who passed away at just 56.

Patricia Meadows’ PF journey
Patricia Meadows from Calgary, Alberta, lives with idiopathic pulmonary fibrosis (PF) with an underlying auto-immune disease. Prior to her diagnosis, Patricia was an active adventurer. With PF, she now has difficulty climbing up many flights of stairs.
Research group looking for survey respondents with PF

CPFF has agreed to assist a research project, the “Canadian Survey on Dysphagia in Chronic Respiratory Diseases”, by promoting its patient survey. The project has been approved by the Research Ethics Board at University Health Network (UHN).
The study focuses on understanding swallowing difficulties (dysphagia) among people with chronic respiratory conditions such as COPD and pulmonary fibrosis. Swallowing problems in this population can increase the risk of aspiration, respiratory infections, and hospitalizations. The researchers aim to better understand the prevalence and impact of dysphagia and its relationship with respiratory symptoms, ultimately supporting earlier identification and improved clinical care.
The survey is available in English and French and takes about 25 minutes to complete. It is open until the end of August 2026.
For more information or questions about the survey, email TRI-SwallowingLab@uhn.ca, or call 416-597-3422 x 7802.
The Swallowing Rehabilitation Research Lab is part of the KITE Research Institute, the research arm of UHN’s Toronto Rehabilitation Institute. KITE is dedicated to improving the lives of people living with the effects of disability, illness and aging.
Know a young person living with rare disease who is pursuing post-secondary education?

The Canadian Rare Disease Network (CRDN) RAREvolution Scholarship is now open and accepting applications until June 12.
This new initiative was created to recognize and support young people ages 17–29 who are living with a diagnosed or suspected rare disease as they pursue post-secondary education.
The scholarship recognizes resilience, leadership, and lived experience within the rare disease community. We know that navigating education while managing complex health realities can present unique challenges, and this program was designed to help reduce financial barriers and celebrate the strength of our community’s youth.
Reach out to your network to anyone who may benefit from this new scholarship. For more information and to apply, visit https://canadianrdn.ca/scholarship/.
Featured Videos
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Supporting the first generation of ILD trained clinicians in Canada



