Our Pulmonary Fibrosis Community

What Psoriatic Arthritis Did to My Lungs

Around the age of 50, I woke up in the morning and could hardly …

So Far So Good

Approximately three years ago I started to experience shortness of breath. I was a …

Life Happens

I am sharing my story because we need to talk about IPF . At …
Couple smiling

Honouring Linda (Clarke) Mcdonald

My sister Linda has IPF. Linda is a member of the Clarke family in …

My journey with IPF

In 2014, I had a cold but the cough wouldn’t go away. It kept …
We had never heard of IPF (Idiopathic Pulmonary Fibrosis later changed to Pulmonary Fibrosis Secondary to Sjogren’s Syndrome) until my husband David was diagnosed with it in 2013.

Two Brothers

We had never heard of IPF (Idiopathic Pulmonary Fibrosis later changed to Pulmonary Fibrosis …
Man and woman standing together

Familial IPF

Our family has had more than our share of IPF. Mom was diagnosed with …
Winnipeg Jets light up for Pulmonary Fibrosis

Winnipeg Jets light up for Pulmonary Fibrosis

Our Winnipeg Jets light up for Pulmonary Fibrosis Awareness …
Winnipeg Forks lights up for Pulmonary Fibrosis Awareness Month

Winnipeg Forks lights up for Pulmonary Fibrosis Awareness Month

On Sept 20 the Forks lit up the WINNIPEG sign in recognition of Pulmonary …
Man Cycling at Halifax Waterfront

Cycling at Halifax Waterfront

John Dennis, 76 1/2 former pulmonary fibrosis patients who received single lung transplant in …
Calgary Tower Lit Up

Calgary Tower Lit Up

Photos of the Calgary tower from September 18th – all red and blue! …
Mission Possible

Mission Possible

In the last two weeks I have ridden another 100K and walked 18K. I …

Jackie Clarke’s Pep Talk

Jackie Clarke’s morning motivational speech! …
Cape Breton's Big Fiddler Lit up for PF

Cape Breton’s Big Fiddler – Lit up for Pulmonary Fibrosis Awareness

A special thanks to Pat Popwell, Support Group Leader from Cape Breton for getting …
Man Cycling at Waterfront

Achille Abbondanza – A Story of Resilience

The inspiring story of Achille Abbondanza. “Cycling became my second and favourite therapy.” Achille …
Calgary Telus Science Spark Centre lit up for PF

Calgary TELUS Science Spark Center Lit Up Saturday

Calgary TELUS Science Spark Center Lit Up Saturday …
Mayor Clark

A Message From Saskatoon’s Mayor Clark

Charlie Clark, Mayor of Saskatoon, declares September 2021 Pulmonary Fibrosis Awareness Month …
September 2021 is Pulmonary Fibrosis Awareness Month

A Message From Calgary’s Mayor Nenshi

A message from Calgary’s Mayor Nenshi: Below is the proclamation from Calgary’s Mayor Nenshi …
Halifax Proclamation

Halifax Proclamation

I met with Mayor Mike Savage, Mayor of Halifax this morning and we had …
Rob and Maggie run/ride in support for CPFF awareness

Rob and Maggie run/ride in support for CPFF awareness

As Rob’s IPF disease progresses, he has figured out how to adapt so that …
Past pictures of our support group blowing bubble together for PF. Laughter and friendship at our Christmas luncheon.

Winnipeg PF Support Group

Laughter and friendship at our Christmas luncheon …
Winnipeg PF Support Group

Winnipeg PF Support Group

Past pictures of our support group blowing bubble together for PF. Laughter and friendship …
John Dennis: On The Road Again

John Dennis: On The Road Again

On the 10th of August I was doing a 50K ride and as I …

My IPF Journey to Palliative Care and Back Again

I was first diagnosed with IPF in 2010. Things were going reasonably well until …
Charlie Clark, Mayor of Saskatoon Declares September Pulmonary Fibrosis Month

Charlie Clark, Mayor of Saskatoon Declares September Pulmonary Fibrosis Month

Mayor Charlie Clark is doing his part to help raise awareness for pulmonary fibrosis …
John Dennis: Mission Possible

John Dennis: Mission Possible

Just an update as I have started to ride and record kilometers on the …
Sandy Craig

Thanks to My Husband and More….

A huge thank you to Abbie & the Clarke family for organizing the walk …
Terry Hardy

Terry Hardy: Together IPF can be beaten

A tribute to Terry Hardy, founder of Niagara IPF support group. “Together IPF can …
Larry

Larry loved…..

Larry loved politics, books, Red Dwarf, bridges, airplanes, single malt scotch, and useless trivia …
In loving memory heart

This is How I Will Always Remember My Mom

Thank you to everyone who lives their lives to help others. This is how …
Murray James Closs

Murray James Closs: Strong, Courageous and Made the World a Better Place

Murray James Closs 1947 – 2017 You will forever be remembered as a strong …
Jackie and Cathy

A Tribute to Jackie and Cathy

A tribute to Jackie who continues to work hard with the Clarke family for …
Marg

Marg: A Wonderful Role Model and a Very Kind and Loving Person

My beautiful mother, Marg. 1930-2016. A wonderful role model and a very kind and …
Albert Campbell

Albert Campbell: Proud That He Was My Dad

My dad Albert Campbell was always so proud of his family and I’m proud …
Donna: You Lived Your Life With Faith and Courage

Donna: You Lived Your Life With Faith and Courage

Our beautiful Mom, Donna 1950-2019. You lived your life with faith and courage. Always …
Richard J. Martin

Richard J. Martin: You Lived Your Life With Principles, Courage, Determination and Unconditional Love

My tribute to my husband Richard J. Martin. You lived your life with purpose, …
Dad : Still miss him greatly

Dad : Still miss him greatly

Thanks to all those who participated in the Clarke Walk for PF. Your support …
Shelley & Rayyan : True Warriors

Shelley & Rayyan : True Warriors

This is a tribute to our daughter Shelley and grandson Rayyan who battle PF …
This is a tribute for our sister Cathy who lost her battle with PF five years ago. She's in this photo with Darren Clarke. We miss her every day.  - Lynda Macdonald

A Tribute to Cathy: We miss her everyday

This is a tribute for our sister Cathy who lost her battle with PF …
Barbara Morrison: A tribute to a beautiful wife, mother, grandmother, and friend

Barbara Morrison: A tribute to a beautiful wife, mother, grandmother, and friend.

Barbara was a loyal advocate for the CPFF, the extended PF community, as well …
This is Abbie's great Grandma Tess (lost to PF in the '80s).

Abbie Clarke’s Great Grandma Tess

This is Abbie’s great Grandma Tess (lost to PF in the ’80s). This is …
Joseph Robichaud: An infectious smile and generous heart

Joseph Robichaud: An infectious smile and generous heart.

My husband Joseph Robichaud lived with Pulmonary Fibrosis and journey to receive a lung …
Peter Kennedy: Love all your girls

Peter Kennedy: Love all your girls

Peter, the imprint you left on our lives will always be in our hearts …
This picture was taken St. Patricks Day 2016, when my husband Brendan was diagnosed IPF.

Brendan: Every picture tells a story

This picture was taken St. Patrick’s Day 2016, when my husband Brendan was diagnosed …
Group of people blowing bubbles at Hamilton City Hall

The Hamilton IPF Group Blowing Bubbles at Hamilton City Hall

This is our 3rd year attending the Hamilton City Sign being illuminated blue and …

John Etherington: Perseverance

John Etherington (1944-2020) fought bravely for 4 ½ years. He did not let shortness …
Deena Eliosoff: My amazing mother and her incredible perseverance

Deena Eliosoff: My amazing mother and her incredible perseverance

In 2010, my mother, Deena Eliosoff, was diagnosed with Systemic Scleroderma which gave her …
Leo: My Resilient Soulmate

Leo: My Resilient Soulmate

My husband Leo was diagnosed with IPF in 2014. His lovely mum Louisa was …
William (Bill) Jamieson: He was truly involved with every one of his children

William (Bill) Jamieson: He was truly involved with every one of his children

My name is Joan-Marie Schoen.  I live in the wonderful city of Calgary. I …
Florence Johnson, Linda Richard and Jeanette Boone

Honoring my amazing mom & her 2 sisters

My mom, Florence, was THE strongest, toughest, most loving and selfless person I know …
Arie Mast: Remembering all the laughter

Arie Mast: Remembering all the laughter

Next week will be a year since Dad passed away from IPF and his …
Arie: A Brave Dutchman

Arie: A Brave Dutchman

Arie lived bravely with IPF for almost 5 years. He was so proud of …
My mum was diagnosed with IPF in April 2016 and I just lost her on September 11, 2020.

Tribute to my Mum

My mum was diagnosed with IPF in April 2016 and I just lost her …
Martha Hardy - a real trooper!

Martha Hardy: a real trooper!

We find it amazing how Martha continues to portray a cheerful and positive attitude; …
My parents, Margaret and Bruce Hill, both passed from IPF.

Forever Strong: Margaret and Bruce Hill

My parents, Margaret and Bruce Hill, both passed from IPF. My Mom’s sister is …
This is my dad, my hero. He has beaten all the odds,

Beat the odds

This is my dad, my hero. He has beaten all the odds, at 11 …
Gordon Parker: My Dad Was Strong Until He Wasn’t

Gordon Parker: My Dad Was Strong Until He Wasn’t

Gordon Parker was diagnosed with IPF in April 2013 and passed away in June …
Heather

My Mother the Warrior: Heather

My mother Heather was diagnosed with IPF about 5 years ago. She passed away …
Barry Lange-I was diagnosed with PF a few years ago. I had mobility and breathing problems.

Barry Lang: Workout

I was diagnosed with PF a few years ago. I had mobility and breathing …

Lloyd Reid: A Constant Positive Outlook On Life

We remember you for your constant positive outlook on life- no matter how you …
Thelma I have been living with rheumatoid arthritis since 1981 and Sjögren’s Syndrome for the last ten years or so.

Thelma Thibodeau: JUST DO IT!

I have been living with rheumatoid arthritis since 1981 and Sjögren’s Syndrome for the …
Eric Celentano: Surviving IPF

Eric Celentano: Surviving IPF

Five years after diagnosis of IPF in 2013 received double lung transplant at UHN …
The Love of My Life: Brenda Lucy Hickey

The Love of My Life: Brenda Lucy Hickey

My wife Brenda Lucy Hickey passed away on June 3, 2020, @ 6:45 am …
Wally: A Teacher of Bravery, Love, and Humour

Wally: A Teacher of Bravery, Love, and Humour

In memory of my husband, Wally, a teacher of bravery, love, and humour …
Rob Garbutt: Living With IPF

Rob Garbutt: Living With IPF

After being a very athletic person my whole life, it has become somewhat of …
Anila Khan: When two worlds collide

Anila Khan: When two worlds collide

I had been working for a few years as a respiratory therapist. During that …
Janette MacDonald: I wish everyone who has this disease good fortune.

Janette MacDonald: I wish everyone who has this disease good fortune.

I was diagnosed with IPF approximately 10 years ago. I believe that I had …

Robert Davidson You’d Be So Proud of CPFF Today

Robert you would be so proud of CPFF today …
Lets Walk Back Across Canada Abbie and Darren

Abbie & Darren Clarke: Let’s Walk Back Across Canada For Pulmonary Fibrosis

Two weeks into global pulmonary fibrosis month and Canadians from coast to coast are …
Greetings from Honourable Christine Elliott, Minister of Health

Greetings from Honourable Christine Elliott, Minister of Health

Honourable Christine Elliott, Minister of Health sends her greetings to Canadians for global pulmonary …
Dr. Jolene Fisher, Respirologist: Working to Improve Healthcare for Pulmonary Fibrosis Patients

Dr. Jolene Fisher, Respirologist: Working to Improve Healthcare for Pulmonary Fibrosis Patients

Dr. Jolene Fisher, MD, respirologist and clinical investigator with the University Health Network in …
Dr. Alyson Wong, MD, Respirologist and CPFF Robert Davidson Fellowship Award Winner

Dr. Alyson Wong, MD, Respirologist and CPFF Robert Davidson Fellowship Award Winner

Dr. Alyson Wong, MD shares how she has furthered her education and been able …

Barbara Barr

Like too many others, Barbara Barr-Haylock’s convoluted route to a diagnosis of IPF took …

Dr. Kerri Johannson

Respirologist Dr. Kerri Johannson at the University of Calgary has been advocating for years …

John Dennis: I Self Advocate

I am inspired by the Clarke family to help raise awareness, funds and to …
Clarke Walk for Pulmonary Fibrosis

Greetings From Naheed Nenshi, Mayor of Calgary

Naheed Nenshi, Mayor of Calgary kicks off CPFF’s Hope Breathes Here 2020 virtual events …
Rayyan Aldosary

Rayyan Aldosary

Rayyan Aldosary was diagnosed at age one with pulmonary fibrosis and is currently on …
Greetings from Wab Kinew, Leader of the Manitoba NDP for Global Pulmonary Fibrosis Month.

Greetings from Wab Kinew, Leader of the Manitoba NDP

Wab Kinew, Leader of the Manitoba NDP, sends his greetings to Canadians for global …
Greetings from Ryan Meili, Leader of the Saskatchewan NDP, for Global Pulmonary Fibrosis Month.

Greetings from Ryan Meili, Leader of the Saskatchewan NDP

Ryan Meili, Leader of the Saskatchewan NDP, sends his greetings to Canadians for global …
Greetings from Peter Bevan-Baker, Leader of PEI's Green Party, for Global Pulmonary Fibrosis Month.

Greetings from Peter Bevan-Baker, Leader of PEI’s Green Party

Peter Bevan-Baker, Leader of the PEI Green Party, sends his greetings from the shores …
Greetings from Honourable Scott Moe, Premier of Saskatchewan for Global Pulmonary Fibrosis Month.

Greetings from Honourable Scott Moe, Premier of Saskatchewan

Honourable Scott Moe, Premier of Saskatchewan sends his greetings to Canadians for global pulmonary …
Jackie Clarke - A Family Touched by Pulmonary Fibrosis

Jackie Clarke

Jackie Clarke, aunt to Abbie Clarke, a remarkable young woman and a driving force …
Greetings from Honourable John Horgan, Premier of British Columbia

Greetings from Honourable John Horgan, Premier of British Columbia

Honourable John Horgan, Premier of British Columbia extends warm greetings to British Columbians participating …
Official Acknowledgements for Pulmonary Fibrosis Month

Official Acknowledgements for Pulmonary Fibrosis Month

Canadian Government Officials provide proclamations, declarations, and greetings for Pulmonary Fibrosis Month. Read Official …
Dr. Daniel Marinescu, Respirologist - Pulmonary Fibrosis Research and Diagnosis.

Dr. Daniel Marinescu, Respirologist: Pulmonary Fibrosis Research and Diagnosis

Dr. Daniel Marinescu is a respirologist in Vancouver, British Columbia. He received a clinical …
Dr. Tiffany Winstone, Respirologist -  Reducing Wait Times for Pulmonary Fibrosis Patients in BC

Dr. Tiffany Winestone, Respirologist: Reducing Wait Times for Pulmonary Fibrosis Patients in BC

Dr. Tiffany Winestone is a respirologist in Vancouver, British Columbia. Dr. Winestone has done …
Nik Stauskas, Canadian Basketball Player Speaks Out For Pulmonary Fibrosis

Nik Stauskas, Canadian Basketball Player Speaks Out For Pulmonary Fibrosis

Canadian Basketball player Nik Stauskas shares his family connection to IPF, and how it’s …
Jacqui Bowick-Sandor Faces Life Post-transplant With Amazing Grace

Jacqui Bowick-Sandor Faces Life Post-transplant With Amazing Grace

Four years ago, double-lung transplant recipient Jacqui Bowick-Sandor ran a Facebook contest to name …
Dr. Jolene Fisher, Respirologist: Working to Improve Healthcare for Pulmonary Fibrosis Patients

Dr. Jolene Fisher, Respirologist: Working to Improve Healthcare for Pulmonary Fibrosis Patients

Dr. Jolene Fisher, MD, respirologist and clinical investigator with the University Health Network in …
Dr. Alyson Wong, MD, Respirologist and CPFF Robert Davidson Fellowship Award Winner

Dr. Alyson Wong, MD, Respirologist and CPFF Robert Davidson Fellowship Award Winner

Dr. Alyson Wong, MD shares how she has furthered her education and been able …
Greetings from Honourable Christine Elliott, Minister of Health

Greetings from Honourable Christine Elliott, Minister of Health

Honourable Christine Elliott, Minister of Health sends her greetings to Canadians for global pulmonary …
Official Acknowledgements for Pulmonary Fibrosis Month

Official Acknowledgements for Pulmonary Fibrosis Month

Canadian Government Officials provide proclamations, declarations, and greetings for Pulmonary Fibrosis Month. Read Official …
Dr. Daniel Marinescu, Respirologist - Pulmonary Fibrosis Research and Diagnosis.

Dr. Daniel Marinescu, Respirologist: Pulmonary Fibrosis Research and Diagnosis

Dr. Daniel Marinescu is a respirologist in Vancouver, British Columbia. He received a clinical …
Dr. Tiffany Winstone, Respirologist -  Reducing Wait Times for Pulmonary Fibrosis Patients in BC

Dr. Tiffany Winestone, Respirologist: Reducing Wait Times for Pulmonary Fibrosis Patients in BC

Dr. Tiffany Winestone is a respirologist in Vancouver, British Columbia. Dr. Winestone has done …
Nik Stauskas, Canadian Basketball Player Speaks Out For Pulmonary Fibrosis

Nik Stauskas, Canadian Basketball Player Speaks Out For Pulmonary Fibrosis

Canadian Basketball player Nik Stauskas shares his family connection to IPF, and how it’s …
Jacqui Bowick-Sandor Faces Life Post-transplant With Amazing Grace

Jacqui Bowick-Sandor Faces Life Post-transplant With Amazing Grace

Four years ago, double-lung transplant recipient Jacqui Bowick-Sandor ran a Facebook contest to name …

Barbara Barr

Like too many others, Barbara Barr-Haylock’s convoluted route to a diagnosis of IPF took …

Dr. Kerri Johannson

Respirologist Dr. Kerri Johannson at the University of Calgary has been advocating for years …

Robert Davidson

Heather and Robert Davidson had an opportunity to talk about an advance care plan …

John Dennis: I Self Advocate

I am inspired by the Clarke family to help raise awareness, funds and to …
Clarke Walk for Pulmonary Fibrosis

Greetings From Naheed Nenshi, Mayor of Calgary

Naheed Nenshi, Mayor of Calgary kicks off CPFF’s Hope Breathes Here 2020 virtual events …
Rayyan Aldosary

Rayyan Aldosary

Rayyan Aldosary was diagnosed at age one with pulmonary fibrosis and is currently on …
Greetings from Wab Kinew, Leader of the Manitoba NDP for Global Pulmonary Fibrosis Month.

Greetings from Wab Kinew, Leader of the Manitoba NDP

Wab Kinew, Leader of the Manitoba NDP, sends his greetings to Canadians for global …
Greetings from Ryan Meili, Leader of the Saskatchewan NDP, for Global Pulmonary Fibrosis Month.

Greetings from Ryan Meili, Leader of the Saskatchewan NDP

Ryan Meili, Leader of the Saskatchewan NDP, sends his greetings to Canadians for global …
Greetings from Peter Bevan-Baker, Leader of PEI's Green Party, for Global Pulmonary Fibrosis Month.

Greetings from Peter Bevan-Baker, Leader of PEI’s Green Party

Peter Bevan-Baker, Leader of the PEI Green Party, sends his greetings from the shores …
Greetings from Honourable Scott Moe, Premier of Saskatchewan for Global Pulmonary Fibrosis Month.

Greetings from Honourable Scott Moe, Premier of Saskatchewan

Honourable Scott Moe, Premier of Saskatchewan sends his greetings to Canadians for global pulmonary …
Jackie Clarke - A Family Touched by Pulmonary Fibrosis

Jackie Clarke

Jackie Clarke, aunt to Abbie Clarke, a remarkable young woman and a driving force …