Finding Hope & Healing as a PF Caregiver – Sandi Bjorgum

Sandi Bjorgum was overcome with grief and shock when her father was first diagnosed with PF. He had always taken care of her, but now it was her turn to take on the role of caregiver. Sandi shares her heartfelt story of fear, courage, acceptance, and hope as she supports her dad in his new normal.

“What has living with IPF been like? I say this like I am the one who has been diagnosed, which I am not, but rather it feels as though this diagnosis has impacted my life just the same. As a caregiver, we are so closely tied to this disease, to the pains, to the struggles, to the grief, to the difficulties, to the medical appointments, to the follow-ups, the questions and decisions”, says Sandi.

In this audio video, Sandi talks about living with pulmonary fibrosis (PF) from the perspective of a caregiver. She shares the things she has learned about what it means to be a caregiver and the different stages and aspects of caregiving.

*This video was presented at the Pulmonary Fibrosis Education Forum in Winnipeg, Manitoba on October 24, 2023. We thank Heidi, Brad, and the PF Education Forum event organizers for allowing us to share this video with our PF community.

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