May 2025

Announcing the CPFF 2025-2026 Robert Davidson Fellowships

Dr. Na’ama Avitzur

Advancing research and developing more respiratory specialists to improve care, as well as expand access to care, are the aims of CPFF’s clinical research fellowships. This year’s fellowship recipients are sure to have an impact on both expanding our knowledge of pulmonary fibrosis and further developing their clinical skills to best serve those with the disease.

CPFF Robert Davidson Fellows are respirologists, who spend at least 75 per cent of their time conducting research and the balance of their time seeing patients. They also teach, take part in other work in their clinics, and collaborate with ILD specialists across the country.

Congratulations to the CPFF 2025-2026 Robert Davidson Fellows: Dr. Na’ama Avitzur, who will complete the second year of her two-year fellowship, and Dr. Pourya Masoudian.

Visit the Research section of CPFFs website for more information about CPFF’s fellowship program and research grants, previous fellows and the results of completed research projects.

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Events

Happening Soon

May

8
1:15 PM to 2:15 PM CDT – In-person event, Winnipeg

Advance Care Planning and Palliative Care

May

12
7 PM to 8 PM EDT

Caregiver Support Group

May

20

May

26
7 PM to 8 PM EDT

Caregiver Support Group

June

2

June

3

June

3

Enjoy a fun day outdoors and support those you love with PF

Rayyan Aldosary and Jackie Clarke

Bring the whole family, your friends, neighbours and colleagues, for a heartwarming day of community, connection, and hope. There are activities for children, great food and an atmosphere of solidarity and hope.

If you live in, or near Edmonton, register now for the city’s inaugural Hope Breathes Here Walk – and the first one of 2025, taking place on June 28 in Wilfrid Laurier Park. “It’s a beautiful spot in the river valley, surrounded by trees,” reports Jackie Clarke, who checked out the site. “And most of the path runs alongside the North Saskatchewan river.”

Ms. Clarke is a member of the Clarke family, which has spearheaded the Walk in Calgary for the past nine years. (Watch the short video below under the patient and caregiver stories section.) This year will be the 10th Walk for PF in the southern Alberta city and it has had great success, raising awareness and funds for PF research.

Register now for one of our Hope Breathes Here Walks taking place in 11 cities across the country.

“It’s a fun day. There’s far more strength with family and friends coming together to support people with PF, than trying to go through it alone. This disease can be so isolating.” – Jackie Clarke

Educational Webinar

What are these tests and why do I have to do them?

Being diagnosed with pulmonary fibrosis (PF) often comes with a long list of medical tests—and a lot of questions. Watch Dr. Charlene Fell, a leading respirologist, for a patient-friendly discussion that will help you understand what these tests are, why they matter, and how they’re used to monitor and manage PF over time.

Whether you’re newly diagnosed or have been living with PF for a while, this webinar will help you feel more confident, informed, and in control of your care.

More information

Watch Now

Patient and Caregiver Stories

The Clarke family’s journey with PF

Pulmonary fibrosis (PF) has played a devastating role in the lives of the Clarke family. Many members of the family have been diagnosed with PF and several of them have unfortunately passed away from the disease.

In this video Jackie Clarke, who carries the PF gene, but does not have any PF symptoms, shares her family’s PF journey. You’ll meet 13-year-old Rayyan Aldosary, who was diagnosed with PF when he was only eight months old, and Abbie Clarke who pioneered the annual Clarke Walk for PF in Calgary, Alberta.

It’s been almost 10 years since eight-year-old Abbie encouraged her family and fellow students to “Walk for PF” to build public awareness, and raise funds for pulmonary fibrosis research. The event has grown steadily since 2015 and this year, Alberta will have a second CPFF Walk for PF in Edmonton.

We celebrate the Clarke Family and thank them for sharing their courageous pulmonary fibrosis journeys.

The Joly family’s journey with PF

Dive into the inspiring journey of the Joly family as they navigate their mother Carol’s rheumatoid arthritis and pulmonary fibrosis conditions. Witness Carol’s incredible spirit, from winning an Army Run at 72 to facing the challenges of declining health.

This is a story of family, love, and the power of making every breath count. Discover how the Joly family rallied together, learned to adapt, and ensured their mother’s comfort and happiness. From reluctant oxygen use to a vibrant social life in rehab, Carol’s story is filled with unexpected moments and valuable lessons.

Eileen Joyce just after her single lung transplant in 2016 at Toronto General Hospital.

The Harvey family had to move to Ontario for Eileen Joyce to get the care and liquid oxygen she needs

When Eileen Joyce Harvey was 58 years old, she packed up to head for Toronto with her husband Bill and their daughter, to wait for a lung transplant. As long as the risky surgery and her recovery went well, she expected to return to her home in Halifax in less than 18 months.

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