January 7 @ 7:00 pm – 8:00 pm EST
Gather virtually with other PF patients from across the country to share ideas, experiences, support one another. Caregivers welcome too!
This facilitator-led virtual National Patient Support Group meets on the first Tuesday of the month at 7 PM ET.
This session will be and open forum. You need to register in advance for this meeting in order to be able to attend. After registering, you will receive a confirmation email containing information about joining the meeting.
Please note that you need to register to each session you wish to attend. If you have any questions or concerns, please email [email protected].
Moderators
John Chan, Support Group Facilitator
Trish Tonelli, Support Group Facilitator
Monthly Topic Overview
Each month, our first meeting will spotlight a specific topic to guide and inspire our conversation. The rest of the meetings will offer an open space for discussion, allowing you to share, connect, and explore freely.
January
Exercise and Rehabilitation
February
Mental Health
March
Nutrition
April
Oxygen/travel
May
Advance Care Planning
June
Symptom Management/Cough/Weight Loss
July
Self Advocacy. How to make a difference in your community
August
Support Care Network
September
Status of New Medications/Trials
October
Giving Thanks
November
Lung Transplant (Transplant recipient and caregiver speaker panel)
December
Gratitude/Holiday Preparation