Learn about patient groups and organizations that can help you with your journey with pulmonary fibrosis.
Coalition for Pulmonary Fibrosis
Canadian Thoracic Society (CTS)
Canadian Organization for Rare Disorders
National Organization for Rare Disorders (NORD)
EURODIS (European Organisation for Rare Diseases)
Mesothelioma Guide (United States)
RareConnect.org (Partnership of EURODIS and NORD)
Papworth Hospital Interstitial Lung Disease service (United Kingdom)
Irish Lung Fibrosis Association (ILFA)
ILFA information sheet for oxygen use with PF
Longfibrose VZW (Belgium)
Lungenfibrose eV (Germany)
Ama Fuoridalbuio (Italy)
Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática (AFEFPI) (Spain)
Longfibrose NL (Netherlands)