Patient Groups and Organizations

Learn about patient groups and organizations that can help you with your journey with pulmonary fibrosis.

Canadian Lung Association

Canadian Thoracic Society (CTS)

Canadian Organization for Rare Disorders

National Organization for Rare Disorders (NORD)

Pulmonary Fibrosis Foundation (United States)

EURODIS (European Organisation for Rare Diseases)

Mesothelioma Guide (United States)

RareConnect.org (Partnership of EURODIS and NORD)

Papworth Hospital Interstitial Lung Disease service (United Kingdom)

Irish Lung Fibrosis Association (ILFA)

British Lung Foundation (BLF)

Pro Rare Austria

Longfibrose VZW (Belgium)

Lungenfibrose eV (Germany)

Ama Fuoridalbuio (Italy)

Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática (AFEFPI) (Spain)

Longfibrose NL (Netherlands)