Patient Groups and Organizations

Learn about patient groups and organizations that can help you with your journey with pulmonary fibrosis.

Coalition for Pulmonary Fibrosis

Canadian Lung Association

Canadian Thoracic Society (CTS)

Canadian Organization for Rare Disorders

National Organization for Rare Disorders (NORD)

EURODIS (European Organisation for Rare Diseases)

Mesothelioma Guide (United States)

RareConnect.org (Partnership of EURODIS and NORD)

Papworth Hospital Interstitial Lung Disease service (United Kingdom)

Irish Lung Fibrosis Association (ILFA)

ILFA information sheet for oxygen use with PF

British Lung Foundation (BLF)

Pro Rare Austria

Longfibrose VZW (Belgium)

Lungenfibrose eV (Germany)

Ama Fuoridalbuio (Italy)

Asociaci├│n de Familiares y Enfermos de Fibrosis Pulmonar Idiop├ítica (AFEFPI) (Spain)

Longfibrose NL (Netherlands)