CPFF Support Groups
CPFF support groups bring together people who are going through similar experiences to share their feelings, coping strategies, and more.
Find a CPFF support group in your community.
Start your own CPFF support group. Get the CPFF Support Group Leader Toolkit.
Patient Groups and Organizations
Coalition for Pulmonary Fibrosis
Canadian Thoracic Society (CTS)
Canadian Organization for Rare Disorders
National Organization for Rare Disorders (NORD)
EURODIS (European Organisation for Rare Diseases)
Mesothelioma Guide (United States)
RareConnect.org (Partnership of EURODIS and NORD)
Papworth Hospital Interstitial Lung Disease service (United Kingdom)
Irish Lung Fibrosis Association (ILFA)
ILFA information sheet for oxygen use with PF
Longfibrose VZW (Belgium)
Lungenfibrose eV (Germany)
Ama Fuoridalbuio (Italy)
Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática (AFEFPI) (Spain)
Longfibrose NL (Netherlands)