Support Groups

CPFF Support Groups

CPFF support groups bring together people who are going through similar experiences to share their feelings, coping strategies, and more. 

Find a CPFF support group in your community.

Start your own CPFF support group. Get the CPFF Support Group Leader Toolkit.

Patient Groups and Organizations

Coalition for Pulmonary Fibrosis

Canadian Lung Association

Canadian Thoracic Society (CTS)

Canadian Organization for Rare Disorders

National Organization for Rare Disorders (NORD)

EURODIS (European Organisation for Rare Diseases)

Mesothelioma Guide (United States) (Partnership of EURODIS and NORD)

Papworth Hospital Interstitial Lung Disease service (United Kingdom)

Irish Lung Fibrosis Association (ILFA)

ILFA information sheet for oxygen use with PF

British Lung Foundation (BLF)

Pro Rare Austria

Longfibrose VZW (Belgium)

Lungenfibrose eV (Germany)

Ama Fuoridalbuio (Italy)

Asociación de Familiares y Enfermos de Fibrosis Pulmonar Idiopática (AFEFPI) (Spain)

Longfibrose NL (Netherlands)