Insights give rise to action following pulmonary fibrosis patient and caregiver survey responses in 2024. As CPFF Executive Director Sharon Lee asserts: “We never assume what people want, we actively ask them what they need from us, and do our best to deliver.”
In this webinar, Sharon joins research experts from Pearl Communications as they deliver the highlights of the results of CPFF’s 2024 patient and caregiver survey completed in the summer of 2024.
During the brief overview of the survey results, Sharon offers several examples of how CPFF is addressing the concerns raised by the survey results. For instance, while the time from symptom recognition to diagnosis is getting shorter, diagnosis still takes longer than a year for more than half of patients. CPFF is addressing this gap with “Know the Signs” and “Tackle the Crackle©” awareness campaigns, to further decrease the time to diagnosis.
Read the full 2024 Breath of Hope; 2024 Patient and Caregiver Report