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What it feels like to not be able to draw enough breath
Todd shares what breathlessness from pulmonary fibrosis really feels like—and why oxygen therapy can make such a critical difference.Through national advocacy, research, and patient voices, CPFF has made a difference. But there is more work to do and we need your voice. Take action and join our #OxygenIsMedicine campaign.
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You need oxygen to survive
Oxygen isn’t optional. It’s essential to survive. Wendy shares why access to oxygen therapy is critical for people living with pulmonary fibrosis. Through national advocacy, research, and patient voices, CPFF has made a difference. But there is more work to do and we need your voice. Take action and join our #OxygenIsMedicine campaign.
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Making sure to use water based products
Respiratory therapist Simon Lu advises oxygen users to choose water-based hand sanitizers, moisturizers, hairsprays, and shaving creams, while avoiding alcohol-based products due to the risk of flammable vapors. Watch full “Mastering Oxygen” video
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Cooking while using an oxygen mask
Respiratory therapist, Simon Lu, shares tips on how to cook safely while using oxygen therapy at home. Watch full “Mastering Oxygen” video
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Building a Future
At the Canadian Pulmonary Fibrosis Foundation (CPFF), we’re building more than awareness—we’re building a future where no one faces Pulmonary Fibrosis alone. With ongoing initiatives, a strong support network, and meaningful resources, we’re committed to ensuring every person living with PF gets the treatment, care, and support they deserve.
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Navigating Funding Rules in Alberta
What is the six-minute walk test, and what does it really tell your care team? This simple test measures fitness, oxygen levels, and helps determine oxygen needs for people living with pulmonary fibrosis. Dr. Fell explains why sometimes different provincial screening tests for oxygen therapy needs may provide different results making it difficult to qualify…
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Varsha Desai left a legacy of love
Throughout her PF journey she was a source of light for others Just days before she passed away on November 26, 2025, Varsha Desai, 61, learned the gender of her first grandchild, expected this spring. She is still the only one who knows. “I held up my phone for her, so she could click on…
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Oxygen Testing and Locating Issues
Early diagnosis starts with awareness. Dr. Ferrara talks about the need to better equip family doctors to recognize pulmonary fibrosis and the tough realities patients face. Some travel hours, even hundreds of kilometres, just to be retested for oxygen.
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Founders Vision
The Canadian Pulmonary Fibrosis Foundation (CPFF) was founded on a powerful vision:That every person living with Pulmonary Fibrosis in Canada should have access to the right care, the right support, and equitable oxygen resources no matter where they live, or what their circumstances may be.This mission continues to guide everything we do. From funding support…
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Maintaining Oxygen Levels
For those living with Interstitial Lung Disease (ILD), ensuring your oxygen levels are at the right setting is critical. Oxygen management is not just about breathing easier—it’s also considered a form of palliative treatment that helps improve comfort, reduce strain on the body, and enhance quality of life. Talk to your care team about finding…











