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  • CPFF Support Group Leader Toolkit

    Start your own CPFF support group. Get the CPFF Support Group Leader Toolkit.

  • Patient Groups and Organizations

    Learn about patient groups and organizations that can help you with your journey with pulmonary fibrosis. Canadian Lung Association Canadian Thoracic Society (CTS) Canadian Organization for Rare Disorders National Organization for Rare Disorders (NORD) Pulmonary Fibrosis Foundation (United States) EURODIS (European Organisation for Rare Diseases) Mesothelioma Guide (United States) RareConnect.org (Partnership of EURODIS and NORD) Papworth Hospital Interstitial…

  • Disability Benefits and Financial Help

    Often caregivers must use their personal finances and savings to pay for the needs of the person they care for. They may need to reduce their hours of work, or their family’s spending to do so. Some will need a loan or have to sell off other assets to afford care. There are several financial…

  • CPFF Virtual Caregiver Support Groups

    Demands on pulmonary fibrosis (PF) caregivers are intense. Connecting with other PF caregivers who share similar experiences can be helpful. Meet virtually with other caregivers across Canada to share ideas and support one another. Register to secure your spot.

  • Caregiver Groups and Organizations

    Carers CanadaA national coalition dedicated to increasing recognition and support for caregivers. Learn More Caregivers AlbertaProviding resources, mental health support, and education. Learn More Family Caregivers of British ColumbiaProviding access to information, education, and support. Learn More The Ontario Caregiver OrganizationBeing a point of access to information and support. Learn More L’appui pour les proches…

  • Educational Videos and Webinar Resources for Caregivers

    Grieving What Was & Finding Acceptance for What Is – Heidi Schollengberg Mental Health: Living Beyond Your Diagnosis -Dr. Elisabeth Saxton Coping with Loss and Change Kamara Tayo-Jones CPFF Documentary – Breathless for Change So you have been diagnosed with pulmonary fibrosis…what’s next?

  • Caregiving Articles & Stories

    Caregiving for a husband with slow progressing PF Breathless for Change Report Pulmonary Fibrosis Patient Guide Keeping active and engaged helps this caregiver keep giving Family moves closer together and becomes a care team Cope and thrive as a PF care partner

  • Caregiver Courses

    Caregiving Essentials A free eight-week online course for primary caregivers to enhance their knowledge and skills. Caregivers will access information over the internet at your own pace, as well as meet others through an online discussion board. Caregiving Essentials Course Topics: Ontario Caregiver Organization courses Provincial Geriatrics Leadership Ontario (PGLO)

  • Caregiving Resources for Health Information & Paperwork Management

    I am a Caregiver starter kit: building your circle of support, reflecting on needs, caring for yourself, and caregiver programs and services (help-line, webinars, support groups, …). Ontario Caregiver Organization. My Caregiver Action Plan: a 25-page booklet for you to keep all important information about your care recipient – available through the McMaster Caregiving Essentials…

  • Chronic Lung Disease Trajectory

    Palliative Care of Chronic Progressive Lung Disease (i.e., Interstitial Lung Disease), Clinical Medicine 2014, Vol 14 No. 1, pp 79-82.