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Lung Transplant Journeys – Brenda Reynolds & Mark Ashcroft
This CPFF webinar features several pulmonary fibrosis (PF) patients who each share the details of their own unique experiences throughout the process of becoming lung transplant recipients. Mark Ashcroft details his journey, which first began in 1997 when his brother passed away from PF. Mark was clear of any signs of PF until 21 years…
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Be alert for early signs, warns caregiver Bill
Looking back now, Bill Bradshaw, 76, recalls the early signs of his wife Jackie’s pulmonary fibrosis. “She’d had a knee replacement and was understandably having trouble walking up hills and dealing with the stairs in our three-storey home. But, it wasn’t just muscle or joint pain. She was out of breath and would have to…
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The Harvey family had to move to Ontario for Eileen Joyce to get the care and liquid oxygen she needs
When Eileen Joyce Harvey was 58 years old, she packed up to head for Toronto with her husband Bill and their daughter to prepare for a lung transplant. As long as the risky surgery and her recovery went well, she expected to return to her home in Halifax in less than 18 months. Eight years…
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“Daddio” lived each day to its fullest
Submitted by Monique Saghdjian. Noubar, husband to Ardemis, and our dad – our Daddio, was diagnosed with idiopathic pulmonary fibrosis early in 2023, though we can say without doubt the symptoms were there long before. His diagnosis didn’t stop him from doing the things that he loved: fishing, hunting, golfing, travelling, and above all creating…
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Roy Alderice’s Journey with Pulmonary Fibrosis
Jennifer and Bill Clements recount the journey of Jennifer’s late father, Roy Alderice, from the initial diagnosis of pulmonary fibrosis through the progression of the disease. Roy needed the time to process the diagnosis, so kept it to himself for some time while he intensely researched his condition. “I think the number one thing is…
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Karen Wade’s Journey with Pulmonary Fibrosis
Karen’s pulmonary fibrosis (PF) journey began with a recurring cough, and being an avid walker, Karen soon noticed she was unable to walk for her usual distances and durations. She knew something wasn’t right, but was dismissed and misdiagnosed by doctors, leaving her with no real answers. Then one day during a physical therapy session,…
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Le parcours de Karen Wade avec la fibrose pulmonaire
Le parcours de Karen avec la fibrose pulmonaire (FP) a commencé par une toux persistante. Comme Karen était une adepte de la marche, elle a rapidement constaté qu’elle n’arrivait plus à faire ses trajets habituels. Elle savait que quelque chose clochait, mais les médecins la renvoyaient chez elle et ne posaient pas le bon diagnostic,…
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The Phillips Family’s Journey with Pulmonary Fibrosis
The Phillips family has been profoundly affected by pulmonary fibrosis (PF), a disease that irreversibly damages and scars lung tissue, and has no cure. After losing their mother and four uncles to the disease, the Phillips family recognized the signs of PF, and three out of the four siblings were eventually diagnosed with pulmonary fibrosis.…
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Le parcours de la famille Phillips avec la fibrose pulmonaire
La famille Phillips a été profondément affectée par la fibrose pulmonaire (FP), une maladie qui endommage le tissu pulmonaire et y cause des lésions de manière irréversible, et pour laquelle il n’existe aucun remède. Après avoir perdu leur mère et quatre oncles à cause de cette maladie, la famille Phillips a reconnu les signes de…
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The Schuler Family’s Journey with Pulmonary Fibrosis
Hans Schuler’s journey with pulmonary fibrosis (PF) began when a bout of winter pneumonia resulted in a 40 day hospitalization. He was placed on oxygen and was later diagnosed with PF. He found peace of mind by developing a deeper understanding of the disease and its progression. In order to support Hans’ wishes and quality…
