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With careful planning you can travel with PF – even overseas
Just ask Usha Glen who last May spent three weeks travelling with friends and family around the UK and to Bruges, Belgium. Usha, 70, of Thornhill, Ontario, was diagnosed with IPF in 2017 and currently uses oxygen – a portable concentrator – only for exertion. “My main concerns were the flight to London; what I…
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Dale Smith’s New Lungs: The Next Step. The Next Chapter.
I previously shared my weight loss story and wait time for a lung transplant. I have since had an additional step/chapter in my IPF journey. The Friday evening of the weekend of Mother’s Day 2023, I received a call with an offer of new lungs. My wife, support person, and I jumped on a plane…
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Understanding Medical Assistance in Dying – Kelsey Goforth
In response to several requests for more information about medical assistance in dying (MAiD), CPFF hosted a webinar to help increase understanding of the complex processes involved in accessing MAiD. During this webinar, Dying With Dignity Canada’s (DWDC) Director of Programs Kelsey Goforth clarifies what the procedure entails, how to go about applying for it, and…
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Advances in Myositis Associated Lung Disease Treatment – Dr Shane Shapera
Dr. Shane Shapera has the gift of making complex topics like myositis associated lung disease treatment understandable for those without medical training. In this webinar, Dr. Shapera talks about myositis and the interstitial lung disease (ILD) that comes with this condition. You will learn about: Learn more about pulmonary fibrosis and palliative care Dr. Shapera…
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Palliative Care for ILD: Exploring Cannabis with Dr Rebecca Colman
Tune in as Dr. Rebecca Colman explains palliative care and symptom management in interstitial lung disease (ILD) and discusses the role of cannabis to alleviate symptoms. In this webinar you will : Learn more about pulmonary fibrosis and palliative care Dr. Rebecca Colman is a respirologist and palliative care physician at Sinai Health System and…
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ILD in Rheumatoid Arthritis, Scleroderma & Other Connective Tissue Diseases – Dr. Janet Pope
Tune in as Dr. Janet Pope shares what you need to know about interstitial lung disease (ILD) in connective tissue diseases (such as lupus, scleroderma, myositis) and rheumatoid arthritis. This webinar is for people who are just learning about ILD or PF AND for those who have lived with this or had a loved one…
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Oxygen 101 with VitalAire – Kelsey Kress & Natalie Collins
Get informed about oxygen therapy with this Oxygen 101 webinar featuring experts from VitalAire. Respiratory therapists (RRTs) Kelsey Kress and Natalie Collins explain the different oxygen equipment and their uses, and provide answers to submitted questions. The information covered in this presentation includes: Kelsey Kress is an RRT and CPSGT, working as a Clinical Expert…
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Dr. Ciaran Scallan – Supporting the Launch of the Largest Study of Cough and ILD
Tune in as Dr. Ciaran Scallan shares how a Canadian Pulmonary Fibrosis (CPFF) research grant helped launch what will soon be the largest prospective study of cough and interstitial lung disease. Chronic cough for people living with pulmonary fibrosis is more than just a symptom of a life threatening disease, it impacts a patient’s quality…
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Aperçu de recherche : déterminer les causes sous-jacentes de la fibrose pulmonaire – David Langlais
David Langlais, professeur agrégé à l’Université McGill, fournit un aperçu de ses recherches sur les causes sous-jacentes de la fibrose pulmonaire. « Pour l’instant, il y a seulement deux médicaments qui sont approuvés, mais malheureusement ces médicaments-là ne guérissent pas la fibrose pulmonaire mais permettent de stabiliser dans certains cas le développement de la fibrose…
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Research Overview: Identifying Underlying Causes of Pulmonary Fibrosis – David Langlais
David Langlais, Associate Professor at McGill University, provides an overview of his research which investigates the underlying causes of pulmonary fibrosis. “In pulmonary fibrosis the arsenal for medications is really limited”, says Langlais. “There’s clearly an important need to identify new treatments for pulmonary fibrosis, and for this we need to understand the causes.” Learn…
