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A Voice in the Wilderness – CPFF Support Groups
Ever feel like you’re navigating the world of caregiving alone? You’re definitely not!
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A practical and realistic approach works best for this caregiver
Wendy Stevens of Toronto describes herself as “an optimist, organized, practical and a problem-solver.” These traits have served her well at work and at home, as mother of two sons, 28 and 33, and wife to Victor. Her younger son is autistic with intellectual disabilities and lives at home. Her older son is married, he…
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Managing Stress and Coping With Loss and Change – Kamara Tayo-Jones
Chronic diseases can be stressful and lead to poor mental health. In this video, Kamara Tayo-Jones, cognitive behavioural therapist at the Wellness Institute in Winnipeg, shares practical strategies to help you build resilience and adapt to your new normal. Tune in as Kamara explores the change, loss, and grief that can happen for people who…
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The Connection Between Connective Tissue Diseases and Pulmonary Fibrosis – Dr. Pope
Did you know connective tissue diseases like rheumatoid arthritis, scleroderma, lupus, sjögren’s and others can increase your risk of pulmonary fibrosis? In this CPFF educational video, Dr. Janet Pope breaks down the crucial connection, explaining in an easy-to-understand way, the early signs, treatment options, and steps you can take. Make sure taking care of your…
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Le lien entre les maladies du tissu conjonctif et la fibrose pulmonaire
Saviez-vous que les maladies du tissu conjonctif comme la polyarthrite rhumatoïde, la sclérodermie, le lupus, le syndrome de Sjögren et d’autres peuvent augmenter votre risque de développer une fibrose pulmonaire? Dans cette vidéo éducative de la FCFP, la Dre Janet Pope explique de façon claire et accessible le lien essentiel entre ces maladies et la…
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A positive attitude makes all the difference when living with PF
“I’ve never done things the easy way,” chuckles Ray Palmer, now 77, of Winnipeg. And so it was, when a bout of pneumonia eventually led to a diagnosis of idiopathic pulmonary fibrosis (IPF) in 2020, just as the pandemic was unfolding. A diagnosis of the auto-immune condition Sjögren’s disease six months later, only added to…
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Dave still enjoys life despite three chronic conditions
He may not climb mountains anymore, but he still golfs It’s not unusual for people living with auto-immune conditions such as rheumatoid arthritis or scleroderma to develop pulmonary fibrosis if their disease progresses and affects their lungs. In Dave Rasmussen’s case, a diagnosis of idiopathic pulmonary fibrosis (IPF) came first. It was followed by a…
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Family Members Sparkle for Life Despite Pulmonary Fibrosis
By Twyla Harris Naciri, Saskatoon, Saskatchewan. Pulmonary fibrosis has taken from my life on several occasions. We have a long history with the disease in our family. On my dad’s side of the family we have had three who have fought this horrible disease. And on my mom’s side of the family, we have also been…
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Practical Strategies for Managing Shortness of Breath and Airway Clearance
Physiotherapist Grant Bainard from the Wellness Institute in Winnipeg shares practical strategies to manage shortness of breath including breathing exercises, airway clearance techniques, devices that promote respiratory health, and medication. In this must-watch video, Grant explains the causes of shortness of breath, and demonstrates exercises and techniques to control breathing, reduce feeling of shortness of…
