Educational Forums

Events

Views Navigation

Event Views Navigation

Today
  • Anti-inflammatory Diet for PF – Tracey Reed

    In this webinar, Tracey Reed will provide an introduction to what an anti-inflammatory diet is, how it supports pulmonary fibrosis, and simple changes you can make in your diet. She will also discuss mast cell involvement in fibrosis and dietary strategies to help stabilize mast cells. Tracey is a Certified Holistic Nutritional Consultant, an instructor […]
  • The Genetics of PF – Dr. Richard Allen

    Dr. Richard Allen will discuss the genetics of PF in this webinar. He will introduce genetics and how generic variations can lead to disease, discuss the genetic changes associated with IPF and other forms of PF, and explore the implications for new treatments and for familial PF patients. His talk will draw on his research […]
  • Vaultt – An App for Patients & Caregivers: Audrey Bond

    Audrey Bond, founder, and CEO will be presenting information on Vaultt, an app that helps patients, families, and caregivers securely organize, track and share vital health information. This event will take place during the weekly national Patient Support Group meeting as a webinar and will be recorded for on-demand viewing.
  • Creating Universal Blood-Type Organs for Transplant – Dr. Marcelo Cypel

    A team of Canadian scientists have proven it’s possible to safely convert the blood type in donor organs intended for transplantation. The findings are an important step towards creating universal type O organs, which would significantly improve fairness in organ allocation and decrease mortality for patients on waitlists. Dr. Marcelo Cypel, one of the scientists […]
  • Advance Care Planning – ​​Karine Diedrich

    Learn about advance care planning in this webinar featuring Karine Diedrich from the Canadian Hospice and Palliative Care Association, which oversees Advance Care Planning Canada. Karine will talk to us about advance care planning, a process of reflection, and communication. It is a time for you to reflect on your values and wishes, and to […]
  • Clinical Trials – Todd Georgieff

    Get an in-depth walk-through of clinical trials and how they work in this webinar featuring Todd Georgieff. Speaker Profile Todd Georgieff, a resident of Montreal, Quebec, is a collaborative, strategic […]
  • Mental Health – Dr. Elisabeth Saxton

    Dr. Elisabeth Saxton is a clinical psychologist that has worked with individuals managing chronic pain and illness for over a decade. Tune in to listen to what she has to say about mental health. Elisabeth graduated from Clinical Psychology in 2005 and after a period working with children and teens doing assessment and treatment, she […]
  • Novel AI Diagnostics & Technology in PF – Colin Edwards

    Learn how novel AI diagnostics and technology help in the delivery of good healthcare and research for pulmonary fibrosis in this webinar featuring Colin Edwards. Speaker Profile Colin Edwards is Chief Scientific Officer and co-founder of patientMpower Ltd, an Irish digital healthcare company specializing in monitoring lung and kidney health. He is responsible for the […]
  • Mast Cells in PF – Tracey Reed

    In this webinar, Tracey Reed will share why it is important to know about mast cells as a contributing factor to the development of pulmonary fibrosis. This presentation will be the first in a 3-part series, and will look at: • The role of mast cells in the body • When they go awry and aren’t […]
  • Dietary Strategies to Stabilize Mast Cells – Tracey Reed

    Following the presentation on Pulmonary Fibrosis and Mast Cells, this next presentation by Nutritional Consultant Tracey Reed looks at some dietary strategies to help reduce the mast cell component of pulmonary fibrosis. These science-based strategies include: • Food preparation tips to get started• Nutrients to add to your diet and the foods that contain them• […]
  • Other lifestyle strategies to stabilize mast cells – Tracey Reed

    Following the presentations on Pulmonary Fibrosis and Mast Cells, and Dietary Strategies to Stabilize Them, this next presentation by Nutritional Consultant Tracey Reed looks at some other lifestyle strategies to help reduce the mast cell component of pulmonary fibrosis. This presentation is the last part in a three-part series that looks at the role of […]
  • Lung Transplant Journeys – Patients & Caregivers

    Instead of the usual, facilitator-led patient support group meeting that takes place on the first Tuesday of every month at 2:00PM ET, this session will instead feature a live webinar during which a handful of patients and caregivers will sharing their journeys with lung transplants. Come prepared with your questions! You need to register and/or […]
  • FIBRONEER-IPF – A Phase 3 Clinical Trial

    Boehringer Ingelheim has enrolled the first patient in FIBRONEER-IPF, a Phase 3 clinical trial evaluating the efficacy, safety, and tolerability of BI 1015550, an investigational therapy for people with idiopathic pulmonary fibrosis (IPF). Donald Zoz, clinical program leader at Boehringer Ingelheim, will tell us more about this clinical trial on July 12!
  • Oxygen 101 with VitalAire

    During this presentation, registered respiratory therapists (RRTs) Kelsey Kress and Natalie Collins, representatives from VitalAire, will explain the different oxygen equipment and their uses, as well as answer any questions you may have about them.   Kelsey Kress is an RRT and CPSGT, working as a Clinical Expert Educator for Air Liquide in Alberta and […]
  • Paralympic Voices of Hope

    Life is filled with bumps and things we wish we could change but the beauty of it is finding joy despite those things. In this webinar, you will hear from Paralympians Brianna Hennessy, Candice Combdon, and Jessica Lewis, each of whom overcame life-altering physical and emotional challenges. Join us as they share their journeys and […]
  • Palliative Care for Interstitial Lung Disease: Exploring Cannabis – Dr. Rebecca Colman

    During this presentation, Dr. Rebecca Colman will be presenting on palliative care and symptom management in ILD with the role of cannabis to alleviate symptoms.   Dr. Rebecca Colman is a respirologist and palliative care physician at Sinai Health System and an Assistant Professor in the divisions of Respirology and Palliative Medicine at UofT. She […]
  • Understanding Medical Assistance in Dying

    While there are many pulmonary fibrosis patients who choose to die with dignity through a MAiD procedure, it is still pretty taboo subject among the community.  During this webinar, Kelsey Goforth, from Dying with Dignity Canada, seeks to clarify what the procedure entails, how to go about applying for it and any other important considerations.   Kelsey […]
  • Pulmonary Fibrosis & Cough – Causes, Treatments & Quality of Life

    Cough is a general symptom that affects the majority of PF patients. In this session, the speakers will address this topic and share some guidelines. Speakers:  Prof Surinder Birring, King’s College Hospital, London (see more here) John Solheim, EU-PFF Board of Directors Member Moderator: John Solheim, EU-PFF Board of Directors Member
  • COVID & Pulmonary Fibrosis

    Join us for this webinar as CPFF fellow and ILD respirologist, Dr. Daniel Marinescu, explains to us the relationship between pulmonary fibrosis and COVID.
  • BEACON-IPF Clinical Trial Overview: Investigating the slowing or halting of idiopathic pulmonary fibrosis

    Get an overview of Pliant Therapeutics BEACON-IPF global clinical trial which aims to find out whether bexotegrast slows down or halts idiopathic pulmonary fibrosis disease progression over a 52-week treatment period by reducing scar formation (fibrosis) of the lungs. Learn about previous clinical trial results, how to participate if you have idiopathic pulmonary fibrosis, and […]
  • Cook with Tracey Reed

    Join nutritionist Tracey Reed online as she creates a nutritious, anti-inflammatory, easy-to-make meal that your whole family will enjoy. ABOUT TRACEYTracey is a Certified Holistic Nutritional Consultant, instructor at the […]
  • Bake with Tracey Reed

    Join nutritionist Tracey Reed as she creates a delicious, lung-friendly, easy-to-make dessert that will have your family asking for more. ABOUT TRACEYTracey is a Certified Holistic Nutritional Consultant, instructor at […]
  • Mastering Oxygen: Understanding Equipment and Support for Better Health

    Join oxygen provider Careica Health as they explain the benefits of oxygen therapy, describe at-home or on-the-go oxygen equipment, and offer support to help you live life to the fullest. How to Participate – In person 1:15 PM CDT In person: Join the Winnipeg support group at Peace Lutheran Church, 350 Gilmore Av, Winnipeg. Arrive at […]
  • Cough and Phlegm Management: Understanding the Difference and How to Clear Both

    Join physiotherapist Grant Bainard from the Wellness Institute in Winnipeg as he describes the difference between cough and phlegm and how to manage both. How to Participate – In person 1:15 PM CDT In person: Join the Winnipeg support group at Peace Lutheran Church, 350 Gilmore Av, Winnipeg. Arrive at 1 PM CDT. The presentation […]
  • Managing Stress and Coping with Loss and Change

    Chronic diseases can be stressful and lead to poor mental health. Kamara Tayo-Jones, cognitive behavioural therapist at the Wellness Institute in Winnipeg, will share practical strategies to help you build resilience and adapt to your new normal. How to Participate – In person 1:15 PM CDT In person: Join the Winnipeg support group at Peace […]
  • Managing Shortness of Breath and Dysfunctional Breathing

    In this session, physiotherapist Grant Bainard will cover essential techniques for managing shortness of breath and addressing dysfunctional breathing, common challenges faced by individuals with pulmonary conditions. Whether you’re living with pulmonary fibrosis or supporting someone who is, this session is a must-attend for learning how to manage breathing difficulties effectively. How to Participate – […]
  • What Do These Tests Mean and Why Do I Have to Keep Doing Them? – Dr. Charlene Fell

    Featuring: Dr. Charlene Fell, Respirologist Being diagnosed with pulmonary fibrosis (PF) often comes with a long list of medical tests—and a lot of questions. Join Dr. Charlene Fell, a leading respirologist, for a patient-friendly discussion that will help you understand what these tests are, why they matter, and how they’re used to monitor and manage […]
  • Healthy Eating for People with Chronic Lung Disease

    Looking to feel your best while living with chronic lung disease? Join us for an informative and encouraging session focused on how nutrition can support your overall well-being. Registered Dietitian Jill Anderson from the Wellness Institute in Winnipeg, will discuss the role of nutrition when living with chronic lung disease. Together we will review key […]
  • Advance Care Planning and Palliative Care

    Advance Care Planning (ACP) is an ongoing process of reflecting on your values, goals, and preferences for care at every stage of life. It’s also about sharing your wishes with your loved ones. Join Dr. Tim Heibert, a palliative medicine specialist and educator from Winnipeg, Manitoba, as he discusses the importance of ACP.  In this […]
  • Nerandomilast in IPF and PPF: A New Option On the Horizon

    Featuring: Dr. Shane Shapera There is a new pulmonary fibrosis medication called Nerandomilast that is currently undergoing government approval processes as a treatment for idiopathic pulmonary fibrosis (IPF) and progressive pulmonary fibrosis (PPF). In this online webinar, Dr. Shane Shapera will discuss the current state of diagnosis and treatment for idiopathic pulmonary fibrosis (IPF) and […]
  • Lung Transplant in 2025: A Review for Patients with Pulmonary Fibrosis

    Join Dr. Ciaran Scallan, respirologist and lung transplant specialist, for an informative webinar on lung transplantation for patients living with pulmonary fibrosis (PF). Dr. Scallan will be joined by PF patient lung transplant recipients who will also share their experiences.  This session will provide a clear, patient-focused overview of the lung transplant journey, including: Whether […]
  • Understanding Generic Drugs: Safe, Effective and Affordable

    Join us for an informative webinar featuring pharmacist Mayno Huynh. This presentation is designed to help patients and families understand how generic drugs are developed, tested, and approved. Learn what makes them a safe, effective, and affordable option for many conditions. Our expert presenter will explain: Whether you’re a patient, caregiver, or advocate, this session […]
  • Travel Insurance 101: What to Know When You Have Pulmonary Fibrosis (1:15 PM CDT)

    Travel can still be part of life when you’re living with a chronic lung disease but it comes with extra questions, especially when it comes to insurance. What’s actually covered? What happens if something goes wrong while you’re away? And how do you avoid unpleasant (and expensive) surprises? Join us for an informative and reassuring […]
  • MIST-PPF Clinical Trial Overview: Studying inhaled Pirfenidone in the treatment of PPF

    Get an overview of Avalyn Pharma Inc.’s MIST-PPF Clinical Trial which aims to study inhaled Pirfenidone in the treatment of progressive pulmonary fibrosis and determine if breathing in the medicine will help reach the lungs more directly where it’s needed most, while reducing the amount that goes to other parts of the body, meaning potentially […]
  • Getting Active: It’s Time to Put Spring Back In Your Step (1:15 PM CDT)

    After a long winter indoors, getting active again can feel both exciting and challenging. Join us this May as Colin Mathieson shares practical insights on transitioning back to movement, building momentum, and making the most of the warmer months ahead. From the benefits and drawbacks of a more sedentary winter to simple, realistic ways to […]