In this webinar, Tracey Reed will provide an introduction to what an anti-inflammatory diet is, how it supports pulmonary fibrosis, and simple changes you can make in your diet. She […]
Dr. Richard Allen will discuss the genetics of PF in this webinar. He will introduce genetics and how generic variations can lead to disease, discuss the genetic changes associated with […]
Audrey Bond, founder, and CEO will be presenting information on Vaultt, an app that helps patients, families, and caregivers securely organize, track and share vital health information. This event will take place during the weekly national Patient Support Group meeting as a webinar and will be recorded for on-demand viewing.
A team of Canadian scientists have proven it’s possible to safely convert the blood type in donor organs intended for transplantation. The findings are an important step towards creating universal type O organs, which would significantly improve fairness in organ allocation and decrease mortality for patients on waitlists. Dr. Marcelo Cypel, one of the scientists […]
Learn about advance care planning in this webinar featuring Karine Diedrich from the Canadian Hospice and Palliative Care Association, which oversees Advance Care Planning Canada. Karine will talk to us about advance care planning, a process of reflection, and communication. It is a time for you to reflect on your values and wishes, and to […]
Learn about genetics and ILD as Dr. Amanda Grant-Orser and Dr. Kerri Johannson present their research paper during the weekly National Patient Support Group (2 PM EST) as a webinar and will be recorded for on-demand viewing. Stay tuned for more information!
Get an in-depth walk-through of clinical trials and how they work in this webinar featuring Todd Georgieff. Speaker Profile Todd Georgieff, a resident of Montreal, Quebec, is a collaborative, strategic leader and excellent communicator with almost 30 years of experience in pharmaceutical drug development in North America, Europe, Latin America, Asia and Australia. He is […]
Dr. Elisabeth Saxton is a clinical psychologist that has worked with individuals managing chronic pain and illness for over a decade. Tune in to listen to what she has to say about mental health. Elisabeth graduated from Clinical Psychology in 2005 and after a period working with children and teens doing assessment and treatment, she […]
Learn how novel AI diagnostics and technology help in the delivery of good healthcare and research for pulmonary fibrosis in this webinar featuring Colin Edwards. Speaker Profile Colin Edwards is Chief Scientific Officer and co-founder of patientMpower Ltd, an Irish digital healthcare company specializing in monitoring lung and kidney health. He is responsible for the […]
In this webinar, Tracey Reed will share why it is important to know about mast cells as a contributing factor to the development of pulmonary fibrosis. This presentation will be […]
Following the presentation on Pulmonary Fibrosis and Mast Cells, this next presentation by Nutritional Consultant Tracey Reed looks at some dietary strategies to help reduce the mast cell component of […]
Following the presentations on Pulmonary Fibrosis and Mast Cells, and Dietary Strategies to Stabilize Them, this next presentation by Nutritional Consultant Tracey Reed looks at some other lifestyle strategies to […]
Instead of the usual, facilitator-led patient support group meeting that takes place on the first Tuesday of every month at 2:00PM ET, this session will instead feature a live webinar during which a handful of patients and caregivers will sharing their journeys with lung transplants. Come prepared with your questions! You need to register and/or […]
Boehringer Ingelheim has enrolled the first patient in FIBRONEER-IPF, a Phase 3 clinical trial evaluating the efficacy, safety, and tolerability of BI 1015550, an investigational therapy for people with idiopathic […]
During this presentation, registered respiratory therapists (RRTs) Kelsey Kress and Natalie Collins, representatives from VitalAire, will explain the different oxygen equipment and their uses, as well as answer any questions […]
During this presentation, Dr. Janet Pope will let us know everything we need to know about interstitial lung disease in rheumatoid arthritis, scleroderma and other connective tissue diseases. More information […]
Life is filled with bumps and things we wish we could change but the beauty of it is finding joy despite those things. In this webinar, you will hear from […]
During this presentation, Dr. Rebecca Colman will be presenting on palliative care and symptom management in ILD with the role of cannabis to alleviate symptoms. Dr. Rebecca Colman is […]
While there are many pulmonary fibrosis patients who choose to die with dignity through a MAiD procedure, it is still pretty taboo subject among the community. During this webinar, Kelsey Goforth, from […]
Cough is a general symptom that affects the majority of PF patients. In this session, the speakers will address this topic and share some guidelines. Speakers: Prof Surinder Birring, King’s College […]
Join us for this webinar as CPFF fellow and ILD respirologist, Dr. Daniel Marinescu, explains to us the relationship between pulmonary fibrosis and COVID.
Join us for this webinar as Dr. Émilie Millaire explains Trevi Therapeutic’s CORAL phase 2 clinical trial for Idiopathic Pulmonary Fibrosis (IPF). Learn about previous trial results, how to participate […]
Get an overview of Pliant Therapeutics BEACON-IPF global clinical trial which aims to find out whether bexotegrast slows down or halts idiopathic pulmonary fibrosis disease progression over a 52-week treatment period by reducing scar formation (fibrosis) of the lungs. Learn about previous clinical trial results, how to participate if you have idiopathic pulmonary fibrosis, and […]
Join nutritionist Tracey Reed online as she creates a nutritious, anti-inflammatory, easy-to-make meal that your whole family will enjoy. ABOUT TRACEYTracey is a Certified Holistic Nutritional Consultant, instructor at the […]
Join nutritionist Tracey Reed as she creates a delicious, lung-friendly, easy-to-make dessert that will have your family asking for more. ABOUT TRACEYTracey is a Certified Holistic Nutritional Consultant, instructor at […]
Join oxygen provider Careica Health as they explain the benefits of oxygen therapy, describe at-home or on-the-go oxygen equipment, and offer support to help you live life to the fullest. How to Participate – In person 1:15 PM CDT In person: Join the Winnipeg support group at Peace Lutheran Church, 350 Gilmore Av, Winnipeg. Arrive at […]
Join physiotherapist Grant Bainard from the Wellness Institute in Winnipeg as he describes the difference between cough and phlegm and how to manage both. How to Participate – In person 1:15 PM CDT In person: Join the Winnipeg support group at Peace Lutheran Church, 350 Gilmore Av, Winnipeg. Arrive at 1 PM CDT. The presentation […]
Chronic diseases can be stressful and lead to poor mental health. Kamara Tayo-Jones, cognitive behavioural therapist at the Wellness Institute in Winnipeg, will share practical strategies to help you build resilience and adapt to your new normal. How to Participate – In person 1:15 PM CDT In person: Join the Winnipeg support group at Peace […]
In this session, physiotherapist Grant Bainard will cover essential techniques for managing shortness of breath and addressing dysfunctional breathing, common challenges faced by individuals with pulmonary conditions. Whether you’re living with pulmonary fibrosis or supporting someone who is, this session is a must-attend for learning how to manage breathing difficulties effectively. How to Participate – […]
Featuring: Dr. Charlene Fell, Respirologist Being diagnosed with pulmonary fibrosis (PF) often comes with a long list of medical tests—and a lot of questions. Join Dr. Charlene Fell, a leading respirologist, for a patient-friendly discussion that will help you understand what these tests are, why they matter, and how they’re used to monitor and manage […]
Looking to feel your best while living with chronic lung disease? Join us for an informative and encouraging session focused on how nutrition can support your overall well-being. Registered Dietitian Jill Anderson from the Wellness Institute in Winnipeg, will discuss the role of nutrition when living with chronic lung disease. Together we will review key […]
Advance Care Planning (ACP) is an ongoing process of reflecting on your values, goals, and preferences for care at every stage of life. It’s also about sharing your wishes with your loved ones. Join Dr. Tim Heibert, a palliative medicine specialist and educator from Winnipeg, Manitoba, as he discusses the importance of ACP. In this […]
Featuring: Dr. Shane Shapera There is a new pulmonary fibrosis medication called Nerandomilast that is currently undergoing government approval processes as a treatment for idiopathic pulmonary fibrosis (IPF) and progressive pulmonary fibrosis (PPF). In this online webinar, Dr. Shane Shapera will discuss the current state of diagnosis and treatment for idiopathic pulmonary fibrosis (IPF) and […]
Join Dr. Ciaran Scallan, respirologist and lung transplant specialist, for an informative webinar on lung transplantation for patients living with pulmonary fibrosis (PF). Dr. Scallan will be joined by PF patient lung transplant recipients who will also share their experiences. This session will provide a clear, patient-focused overview of the lung transplant journey, including: Whether […]
Join us for an informative webinar featuring pharmacist Mayno Huynh. This presentation is designed to help patients and families understand how generic drugs are developed, tested, and approved. Learn what makes them a safe, effective, and affordable option for many conditions. Our expert presenter will explain: Whether you’re a patient, caregiver, or advocate, this session […]
Travel can still be part of life when you’re living with a chronic lung disease but it comes with extra questions, especially when it comes to insurance. What’s actually covered? What happens if something goes wrong while you’re away? And how do you avoid unpleasant (and expensive) surprises? Join us for an informative and reassuring […]
Get an overview of Avalyn Pharma Inc.’s MIST-PPF Clinical Trial which aims to study inhaled Pirfenidone in the treatment of progressive pulmonary fibrosis and determine if breathing in the medicine will help reach the lungs more directly where it’s needed most, while reducing the amount that goes to other parts of the body, meaning potentially […]
After a long winter indoors, getting active again can feel both exciting and challenging. Join us this May as Colin Mathieson shares practical insights on transitioning back to movement, building momentum, and making the most of the warmer months ahead. From the benefits and drawbacks of a more sedentary winter to simple, realistic ways to […]